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£50raised of £10,000 target by 3 supporters

Weʼre raising £10,000 to Me and my friend are fundraising for this beautiful family to have an amazing fun filled holiday and also would like 2 donate 10% to charity

Blackpool, UK

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Support page for Vinny

THE PAGE ABOVE WHICH IS ON FACEBOOK WITH ALL THE INFORMATION REGARDING WAYNE AND HIS JOURNEY.

Wayne was diagnosed with type 1 diabetes when he was 11 years old. He has had many health problems as a result of his diabetes, i.e. Wayne went into a coma at 11 years old which resulted in them finding out he was type 1 diabetic.

At 28 Wayne lost his eyesight (vitreous haemorrhage) and under went an operation on his eyeballs to try and get his eyesight back. Wayne was blind for around 6 months before his eyesight returned to normal after this operation.

In 2012, Wayne's kidneys had started to fail very quickly and he was told then that this was due to his diabetes. Wayne then became quite withdrawn, struggled to deal with his deteriorating kidney and became quite depressed.

His mother donated her kidney to him on the 29th September 2012. Wayne recovered well after the operation, but his mum had quite a few complications and ended up with a hernia as a result of the operation.

This was something that Wayne found very hard to deal with and again became quite depressed at the thought that his mother had become so poorly and he hadn't. His mother did eventually get better and her life was back on track again, which was great news!

Danielle and Wayne met in July 2014 and got together on his birthday 29th July, they knew from the second they met that it was going to be something very special.

The kids admire Wayne and he worships the ground his children walk on. It has been very hard for them all as a family! They have all stood by Wayne and stuck together threw all these upsetting stressful emotional times. They are very thankful for everybody who has helped them.

As the months passed, Danielle found out about his health complications and realised quite quickly that living life as a type 1 diabetic with a transplanted kidney was not an easy life. Having no immune system means he is prone to picking up illnesses and infections so much more than an average person and sometimes, when he did catch something, he ended up in hospital in order for them to monitor his kidney function.

In February 2016 Danielle and Wayne moved into there first home together as a family and on his birthday 29th July 2016 (there anniversary) he whisked Danielle away from everyone who was out celebrating his birthday at Las Iguanas and proposed as the sun set outside the wedding chapel on the promenade facing out to the sea, and from then on they started to plan there wedding for the 29th September 2018.

On the 4th January 2017, they found out that Danielle was pregnant and was going to have a baby who was due on the 28th August.

In February 2017, after routine blood test, it was that there was a protein leak and his Creation levels were abnormally high, therefore they rushed him in for a biopsy. This is when he was told his transplanted kidney was in rejection. His kidney function at this point in time was 47%. In order to save the kidney, his consultant made changes to his medication and kept a close eye on his kidney function, and they started to prepare him for his build up for a pancreas/kidney transplant.

On the 26th July 2017 Wayne under went another biopsy to find the cause of the rejection, but they couldn't find any reason for the kidney to be deteriorating so quickly. This was quite an upsetting time for him as, by this time Danielle was quite heavily pregnant and he was worried he would miss the labour because of the amount of hospital appointments and admissions he was currently undergoing. Wayne came home from this admission and started to recover, luckily, as Danielle went into labour 4 weeks early and gave birth to there beautiful little boy Reggie on the morning of the 3rd august 2017.

Only a few weeks after Reggie was born on the 7th September, he was admitted to hospital again as he was feeling unwell and he was transferred to Preston as Blackpool didn't want to make any decisions to let him home until his own Consultant had seen him.

He was discharged on the 9th September, on the 15th September we attended Manchester Royal Infirmary to meet the consultant and get the ball rolling for the kidney/pancreas transplant but he was advised that he would only be put on the list for this transplant if he had dental clearance.

After an appointment at Chorley hospital, it was decided that he has to have his four upper front teeth and four lower front teeth removed due to a risk of infection.

This was another hurdle he had to come to terms with. As his kidney function was being closely monitored, it was picked up quite quickly that the function was dropping relatively quickly and he was called in after a routine check to have a three day intensive intravenous steroid treatment (250ml daily, which was increased to 500 as it wasn't having the desired effect on the kidney). He was admitted the following Sunday for another biopsy so they could again try to find the cause of the kidney failure. The kidney was transported straight to Manchester so they could try to come to some conclusion. Their response was that they were puzzled and didn't know what was causing the kidney failure. After a couple of weeks they advised that it wasn't his diabetes (and it probably wasn't the diabetes that had attacked his original kidneys in 2012) and it wasn't his own body rejecting the kidney, but that he has some kidney disease that they are, at present unsure of. The problem here, is that until they find out the cause, they will be unable to treat it and it will most likely end up attacking the next kidney, therefore at the moment, both Manchester and Preston are still investigating this.

He was advised a few weeks ago that because his kidney is deteriorating so quickly, he would have to consider dialysis.

His consultant knew his view on dialysis and had been trying his best to keep his kidney going as long as possible in order to keep him from needing dialysis. After another admission at the end of October he decided that he would attend a meeting and at least think about the dialysis and he came to the decision that if he really had to, he would choose peritoneal dialysis (from home) as the thought of dialysis worried him.

He became extremely poorly on the 17th November and his mum took him straight to Preston hospital and he was admitted. He had pneumonia and a viral infection on top of the symptoms of his kidney failure and had to under go lots of intense treatment resulting in him receiving emergency dialysis.

He is now attending Preston Royal infirmary 3 days a week for dialysis (which he said he would never have). He has been taken off the pancreas/kidney list at present as he isn't fit enough to undergo the operation.

All other updates are on the facebook page.

https://www.facebook.com/groups/429625084106192/

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Updates

5

  • Miss Lisa Karon Jones6 months ago
    Miss Lisa Karon Jones

    Miss Lisa Karon Jones

    6 months ago
    Update from the Page owner

    Dig deep guys x

    Share this update to help us raise more

  • Miss Lisa Karon Jones6 months ago
    Miss Lisa Karon Jones

    Miss Lisa Karon Jones

    6 months ago

    https://www.facebook.com/groups/429625084106192/ Follow up all on the page above Many thanks Jodie X

    Update from the Page owner

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  • Miss Lisa Karon Jones6 months ago
    Miss Lisa Karon Jones

    Miss Lisa Karon Jones

    6 months ago
    Update from the Page owner

    Share this update to help us raise more

6 months ago

Miss Lisa Karon Jones started crowdfunding

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Page last updated on: 2/13/2018 12:54 PM

Supporters

3

  • S Shockledge

    S Shockledge

    Feb 11, 2018

    £20.00

  • Christina Addison

    Christina Addison

    Feb 11, 2018

    Such a beautiful thing to do for a great cause and family. Let’s hope Vinny gets his transplant sooner rather than later. Big love to you all ❣️ Love Christina and Martino

    £20.00

  • julie lucas

    julie lucas

    Feb 11, 2018

    What a wonderful idea.x

    £10.00

Miss Lisa Karon Jones

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About the fundraiser
Miss Lisa Karon Jones

Miss Lisa Karon Jones

Blackpool, UK

Me and my friend have decided to make a fundraising page, also a couple of events to help the family to have a well deserved fun filled loving holiday! They have had a very tough few years with Wayne's illnesses & has had a very hard effect on the family due to this.

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