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Lisa Stanford raised £820 from 29 supporters

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Closed 02/09/2018

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£820raised of £750 target by 29 supporters

    Weʼve raised £820 to Raise money for cancer treatment for brave 7 year old Ebonie-Rose Musslewhite

    Isle of Wight
    Funded on Sunday, 2nd September 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    Hi my name is Kaylee, I am 12 years old. I am donating12 inchs of my hair (16/7/2018, which would have been my Nan’s birthday) in hope of providing a wig for a child with cancer. I am doing this because I lost my wonderful Nan in August 2013 to cancer (which was heart breaking). But now I would like to also raise money for our closest family friends. Ebonie-Rose is an amazing 7 year old who needs funding for treatment currently not avaliable on the NHS, this is her story:

    Ebonie was diagnosed with Philadelphia chromosome positive leukaemia in February 2016, a rare subtype to acute lymphoblastic leukaemia. She underwent very high dose chemo for a year, losing her hair 3 times, the ability to walk for a time and had many hospital admissions for infection and low blood counts. In October 2017, she relapsed in the CNS (central nervous system) and again went into have gruelling chemotherapy and high dose chemo injected into her spine to bring her into remission to them go forward for a bone marrow transplant. For the transplant she had 4 boosts of cranial radiation and 6 rounds of total body irradiation then her brothers cells in January 2018. Unfortunately 4 months after this she has relapsed again in the CNS. Due to the timing of relapse her options are slightly limited.

    Most treatments/trials are available to children that are 6 months post transplant. Because of this she may need to go to America to join a trial which is going to cost around £400,000.. this will cover all the trial costs, cells, daily care, blood tests, pokes, everything you can imagine needs doing that we take for granted due to the nhs. Also it will cover flights and accommodation whilst there.

    Before we know about treatment in America we need to try to get funding for a specific medication targeting the Philadelphia chromosome called dasatinib.. our understanding is that rarely the uk will fund this and we will need to pay for it ourselves, the cost being between £3000 & £4000 a month. This medicine will be needed for months but possibly even years..

    Our aim is to get Ebonie into remission ready to start a trial whether it be in the uk or America

    Updates

    7

    • Lisa Stanford4 months ago
      Lisa Stanford

      Lisa Stanford

      4 months ago
      Update from the Page owner

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    • Lisa Stanford5 months ago
      Lisa Stanford

      Lisa Stanford

      5 months ago

      Tears, but she did it. More than pledged! Well done Kaylee. So proud xx

      Update from the Page owner

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    • Lisa Stanford5 months ago
      Lisa Stanford

      Lisa Stanford

      5 months ago

      So hair is washed and ready to cut once dry! So proud of you Kaylee, three great reasons,love Mum 1. In memory of Nan (Heavenly birthday today) 2. To give a gift of a wig 3. To raise much needed funds for our special Ebonie-Rose xx

      Update from the Page owner

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    7 months ago

    Lisa Stanford started crowdfunding

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    Page last updated on: 9/1/2018 11:46 AM

    Supporters

    29

    • Anonymous

      Anonymous

      Aug 16, 2018

      Good luck with all your hard work and hope this helps Ebonie-Rose.

      £50.00

    • Anonymous

      Anonymous

      Jul 20, 2018

      £20.00

    • Edward Lloyd

      Edward Lloyd

      Jul 17, 2018

      Well done Kay! 😘 Xx

      £5.00

    • Jean and Bill

      Jean and Bill

      Jul 16, 2018

      A wonderful thing you are doing .... very best wishes.

      £30.00

    • Amy Wright

      Amy Wright

      Jul 16, 2018

      Well done kay! your doing something amazing! xxx

      £15.00

    • Grandad Cater

      Grandad Cater

      Jul 11, 2018

      Well done Kaylee!!

      £50.00

    • Sophie Vickers

      Sophie Vickers

      Jul 10, 2018

      What an amazing thing you’re doing Kaylee! I hope you’re very proud of yourself! What a lovely friend and person you are xx

      £30.00

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    About Crowdfunding
    About the fundraiser
    Lisa Stanford

    Lisa Stanford

    Isle of Wight

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