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£820raised of £750 target by 29 supporters

Weʼre raising £750 to Raise money for cancer treatment for brave 7 year old Ebonie-Rose Musslewhite

Isle of Wight

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Story

Hi my name is Kaylee, I am 12 years old. I am donating12 inchs of my hair (16/7/2018, which would have been my Nan’s birthday) in hope of providing a wig for a child with cancer. I am doing this because I lost my wonderful Nan in August 2013 to cancer (which was heart breaking). But now I would like to also raise money for our closest family friends. Ebonie-Rose is an amazing 7 year old who needs funding for treatment currently not avaliable on the NHS, this is her story:

Ebonie was diagnosed with Philadelphia chromosome positive leukaemia in February 2016, a rare subtype to acute lymphoblastic leukaemia. She underwent very high dose chemo for a year, losing her hair 3 times, the ability to walk for a time and had many hospital admissions for infection and low blood counts. In October 2017, she relapsed in the CNS (central nervous system) and again went into have gruelling chemotherapy and high dose chemo injected into her spine to bring her into remission to them go forward for a bone marrow transplant. For the transplant she had 4 boosts of cranial radiation and 6 rounds of total body irradiation then her brothers cells in January 2018. Unfortunately 4 months after this she has relapsed again in the CNS. Due to the timing of relapse her options are slightly limited.

Most treatments/trials are available to children that are 6 months post transplant. Because of this she may need to go to America to join a trial which is going to cost around £400,000.. this will cover all the trial costs, cells, daily care, blood tests, pokes, everything you can imagine needs doing that we take for granted due to the nhs. Also it will cover flights and accommodation whilst there.

Before we know about treatment in America we need to try to get funding for a specific medication targeting the Philadelphia chromosome called dasatinib.. our understanding is that rarely the uk will fund this and we will need to pay for it ourselves, the cost being between £3000 & £4000 a month. This medicine will be needed for months but possibly even years..

Our aim is to get Ebonie into remission ready to start a trial whether it be in the uk or America

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Updates

6

  • Lisa Stanford1 month ago
    Lisa Stanford

    Lisa Stanford

    1 month ago

    Tears, but she did it. More than pledged! Well done Kaylee. So proud xx

    Update from the Page owner

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  • Lisa Stanford1 month ago
    Lisa Stanford

    Lisa Stanford

    1 month ago

    So hair is washed and ready to cut once dry! So proud of you Kaylee, three great reasons,love Mum 1. In memory of Nan (Heavenly birthday today) 2. To give a gift of a wig 3. To raise much needed funds for our special Ebonie-Rose xx

    Update from the Page owner

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  • Lisa Stanford1 month ago
    Lisa Stanford

    Lisa Stanford

    1 month ago

    Sorry typing error should say £13,000.00.

    Share this update to help us raise more

3 months ago

Lisa Stanford started crowdfunding

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Page last updated on: 8/16/2018 4:03 PM

Supporters

29

  • Anonymous

    Anonymous

    Aug 16, 2018

    Good luck with all your hard work and hope this helps Ebonie-Rose.

    £50.00

  • Anonymous

    Anonymous

    Jul 20, 2018

    £20.00

  • Edward Lloyd

    Edward Lloyd

    Jul 17, 2018

    Well done Kay! 😘 Xx

    £5.00

  • Jean and Bill

    Jean and Bill

    Jul 16, 2018

    A wonderful thing you are doing .... very best wishes.

    £30.00

  • Amy Wright

    Amy Wright

    Jul 16, 2018

    Well done kay! your doing something amazing! xxx

    £15.00

  • Grandad Cater

    Grandad Cater

    Jul 11, 2018

    Well done Kaylee!!

    £50.00

  • Sophie Vickers

    Sophie Vickers

    Jul 10, 2018

    What an amazing thing you’re doing Kaylee! I hope you’re very proud of yourself! What a lovely friend and person you are xx

    £30.00

Lisa Stanford

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About the fundraiser
Lisa Stanford

Lisa Stanford

Isle of Wight

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