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£5,347raised of £5,000 target by 183 supporters

Weʼre raising £5,000 to help with any support or treatment Ted and his family may need throughout this difficult time.

Leamington Spa, UK
18 days to go

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Story

This is famous little Ted and here is his story.......

Nat and Kev found out at 12 weeks pregnant that there was going to be problems with Teds growth in the womb and at 20 weeks received the diagnosis of IUGR (Intrauterine Growth Restriction) and was told that Ted would have to be delivered early and would likely be very small.

Along with IUGR, Natalie developed severe pre-eclampsia which had gone into her nervous system and at 28 weeks was rushed to theatre for an emergency c-section. Ted was born on Wednesday 31st May at 00.36 weighing a tiny 1lb 9.5oz (725g).

Ted wasn’t breathing when he was born and was taken straight to the Neonatal Intensive Care Unit where he was stabilised. Nat got to see Ted for the first time 12 hours later.

Ted has had a very rocky journey from day 1 and has fought through everything. Ted has chronic lung disease and is on home oxygen.

After months of being in and out of hospital asking for help as they knew something was wrong but was let down over and over again, Nat and Kev drove Ted to Birmingham A&E and begged for help. They were admitted immediately and 2.5 weeks later Ted was diagnosed with a very rare incurable heart condition called Pulmonary Vein Stenosis. This condition causes the veins going to teds heart to narrow and eventually close.

At 8 months old Ted weighed a tiny 7lb. After his first operation in January to open up the veins going into his heart Ted started to gain weight and reached 8lb 11 before he started deteriorating again and went in for his second operation. Birmingham Children’s Hospital said there was nothing more they could do for Ted so Nat and Kev asked for a second opinion from Great Ormond Street and Ted was accepted for open heart surgery. Once Ted had recovered from his second operation on 5th March he was transferred to Great Ormond Street Hospital. At 9.5 months Ted reached 9lb and had open heart surgery on 19th March. Ted is currently recovering in intensive care.

The surgery will hopefully give ted longer at home before he has to have another operation. Unfortunately there is no cure for Teds heart condition and his body will eventually be unable to undergo further operations.

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Updates

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  • Samantha O'Reilly6 months ago
    Samantha O'Reilly

    Samantha O'Reilly

    6 months ago

    From Ted's mummy... 17th June 2018 My gorgeous, smiling, amazing little warrior ended his fight yesterday. Ted passed away peacefully in my arms at 10pm last night. He fought as hard as he could and gave us an absolutely amazing year with him which was filled with so much love and happiness. Even with everything Ted has had to go through in his life he was still the happiest little boy there was. His smile was enough to light up a room and melt the hearts of everyone he met......

    Update from the Page owner

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9 months ago

Samantha O'Reilly started crowdfunding

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Page last updated on: 7/5/2018 12:31 PM

Supporters

183

  • Vic and Mark

    Vic and Mark

    Jul 5, 2018

    £40.00

  • Heidi & Carl

    Heidi & Carl

    Jun 25, 2018

    Our thoughts are with you always!! Fly high little man, stay strong Nat & Kev you were an inspiration today!! 💙💙 heidi & Carl

    £20.00

  • Joanne Newell

    Joanne Newell

    Jun 20, 2018

    This £50 donation has been raised by Twisted Sisters Page - Thinking of you all xxxxx

    £50.00

  • Sandra Cremin

    Sandra Cremin

    Jun 18, 2018

    With all our love Sandra and Skipm xxxx

    £30.00

  • Lauren Jakeman

    Lauren Jakeman

    Jun 17, 2018

    ❤️❤️ xx

    £10.00

  • R Males

    R Males

    Jun 15, 2018

    Keep fighting and stay strong 💜

    £25.00

  • Amy Parham

    Amy Parham

    Jun 15, 2018

    Sending lots of love at this difficult time xxxxx

    £30.00

Samantha O'Reilly

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About the fundraiser
Samantha O'Reilly

Samantha O'Reilly

Leamington Spa, UK

Ted's Auntie

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