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Iain Norrie raised £2,805 from 94 supporters

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Closed 06/11/2018

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£2,805raised of £1,000 target by 94 supporters

    Weʼve raised £2,805 to Support our journey to mend Iains broken heart.

    Funded on Tuesday, 6th November 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    Little Iain has endured so much in his short life, more than most adults will have in their lifetime and certainly not the start to his life that we as his parents would have chosen. He is three years old and he is a warrior!

    Iain has Kabuki syndrome a rare genetic disorder that effects one in every 32,000 children around the world. It effects every child in different ways but for Iain the most worrying issue that he has is a broken heart. Iain had his 14th surgery on the 6th June a heart surgery to place a band on his pulmonary artery which controls the flow through the holes in his heart and ensures his lungs get the right amount of blood. This band allows us and the amazing medical team that treat him more time. Iain's heart is so complex in it's shape and function that in it's current condition presents his team with unanswerable questions. With each day that passes we as his parents hope that a medical solution can be found but we are also realistic and need to be prepared for any eventuality no matter where in the world that may be we also need to be able to provide him with all the equipment and adaptions that he needs. Iain is still unable to walk despite his best efforts so far. He is not able to swallow so is tube fed and still requires oxygen overnight. Due to Iains already complex health needs he will not be eligible for a heart transplant so we have to hope that as medical science progresses a solution is found.

    Our amazing friends Steven and Vicky Ledgerwood and Les and Sarah Spiteri have decided they want to help us fundraise for Iain and are planning to throw themselves out an airplane skydiving on 18 August near St Andrews. They have asked us to set up this page for donations. They have covered all the costs of the skydive so every penny donated will go to wee iains fund.

    Thank you all from the bottom of our hearts.

    The Norries
    xxx

    Updates

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    Iain Norrie

    Updates appear here

      5 months ago

      Iain Norrie started crowdfunding

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      Page last updated on: 11/6/2018 7:43 PM

      Supporters

      94

      • Joanne Gath

        Joanne Gath

        Nov 6, 2018

        Well done Marie from Aunt Anne & Joanne xx

        £10.00

      • Anonymous

        Anonymous

        Nov 5, 2018

        £10.00

      • Barbara Biggins

        Barbara Biggins

        Nov 4, 2018

        £10.00

      • Lyndsey lusk

        Lyndsey lusk

        Nov 4, 2018

        Well done!!!!

        £10.00

      • Isobel Auld

        Isobel Auld

        Nov 4, 2018

        Well done XXX

        £10.00

      • Andrew Miller

        Andrew Miller

        Nov 4, 2018

        Xxxx Andrea, Andy, Rowan and Jake

        £20.00

      • David Connolly

        David Connolly

        Nov 3, 2018

        £20.00

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      Iain Norrie

      Iain Norrie

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