Story
Olivias journey Hi ,Well where do I start, Olivia over the last year has been complaining of abdominal pains and leg ache as there didn't seem anything unusual apart from she was a little thin I dismissed it as growing pains.
How wrong was I, a month ago Olivia fell down the stairs and her pain increased so she attended a and e where we were told she hadn't hurt her back but she was showing as having a lumber curve also known as scoliosis.
On Tuesday 1st June Olivia saw the head of scoliosis from alderhey, She firstly had more X-rays taken which revealed a hidden huge curve in her chest.
The consultant advised <25 degree curve is mild, 25-40 is moderate and 40+ is severe 85-90+ is life threatening
olivias curves are 59 in her chest and 41 in her lumber with a riser of 3
You can imagine the shock. He advised the only option in the uk is for her to have the whole spine fused which will restrict her flexibility.
Now anyone who knows Olivia knows she loves to sing and dance and do her drama, this was one heck of a blow.
So I came home and have researched, joined groups, researched some more. There are alot of people who have been told the same as us but who have then been told by world class surgeons in usa and Europe that the back can be tethered which maintains flexibility and they go on to live a unrestricted life.
I have sent Olivias x rays and report to several surgeons and one in the usa and turkey have replied saying that she is a candidate for the tethering but, because she has nearly reached full growth time isn't on our side and they need her there asap.
We have decided upon turkey as the surgeon has been amazing in his correspondence and to be honest its alot less money although still a huge amount to raise in such a short space of time.
So here is the fun part and I hate to be in this position to have to ask but what mum wouldn't ? I have the challenge of raising £47000 just to cover the operation
Anyone who knows me knows I am quite a private person and don't put alot out there about my private life but I am stepping out of my comfort zone to literally beg for your help.
I have set up a just giving page and will post the link on the group.
Any fundraising is very much welcomed, Any questions please ask, Olivia and I are going to use the group to record her / our journey you can follow us on her group ... Liv.. these curved wings will fly