Bobby was born On 11th may 2013.
On arrival, he was motionless and quite floppy. Although he was rushed out of the delivery room, he soon returned and mum and dad were told that he was 'just a lazy boy'.

Bobby couldn't quite get the hang of feeding, bottle or breast, so mum and dad were syringing milk into his mouth. Mum and Bobby remained in hospital for 6 weeks in the paediatric intensive care unit while they ran extra tests.

A couple of weeks later, the family was informed that Bobby had Chromosome 14q Deletion Syndrome and Gastro Oesophageal Reflux Disorder (GORD). No one is able to say what the future holds, but Bobby will have learning difficulties and will be physically disabled although they are not able to say to what extreme.

Chromosome 14q Deletion Syndrome is a rare condition and it is believed there are only 12 other known cases of the condition with the oldest child only being 17 years old.
Life has had to change now and Mum has had to give up work to become Bobby's full time carer.
The family have had to make many adaptions to their house so that Bobby can live as normal life as possible.

Bobby can't support himself very well and is am fed on a pump which is running 24 hours a day and feeds straight into his bowel.
He vomits and gags up to 20 times a day.

As Bobby grows it becomes harder for the family to carry him.

Lou Dutch and her friend Bex Johnson would like to raise some funds for some home adaptions for Bobby such as fitting a wet room, a lift and extending my bedroom to accommodate Bobby's extra needs.
They will be running the North Downs Way 100 mile ultra marathon from Farnham to Kent which is a continuous run off road and on extremely hilly terrain and 10,000 ft of elevation. They have 30 hours in which to complete it. Although this is a huge challenge, it does not compare to the challenge Bobby and his family face every day.

Any donation would be hugely appreciated by Bobby and his family.