Weʼre raising £3,500 to My father is 55yrs old and has MND he is a huge Elvis fan and I would love to be able to take him to Graceland. Please help 🙏🏻
- Leeds, West Yorkshire, United Kingdom
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My father Robert is 55yrs old and after several mini strokes and his speech being slurred between 2016/17 was diagnosed with progressive bulbar palsy MND in july 2017.
This was a massive shock to him and our family and friends because symptoms were very similiar to the stroke slurred speech etc so was not very easy to detect and diagnose. I am the main carer for dad so recently gave up my job to be available and take care of him. He was told that max life expectancy is between 14 months and 3years.
Dad can no longer talk he uses an ipad to communicate he cannot eat or drink and was fitted a PEG into his stomach in october. His condition is progressing and now is slowly starting to affect his mobility. There is no cure for his condition all we can do is manage this day by day. Since being diagnosed things have been really difficult for all of us tryng to adjust to and meet the needs of dads condition. Although i cannot imagine what it feels like for dad not ever being able to live the life we all take for granted sometimes Like simply enjoying some nice food or having a drink even socialising has become difficult as dad cannot speak and some people shy away from communicating with him. To see him suffering because of this aggressive condition and knowing theres is nothing anyone can do is heartbreaking. Many times he can choke on his own saliva as the muscles in his neck and throat arent working properly to enable him to swallow. In my eyes he is incredibly strong and brave and i am so proud of him and how he is coping with everything although he does have his down days and gets frustrated because he cant talk or eat and drink. His mobility is slowly decreasing, from being a little girl i always remember me walking ten strides to his one just to keep up and now the tables have turned. He wears a neck brace most of the time to help support his neck and keep his head up as even that is difficult for him. He wears a support on his ankle to help stop him from falling over as his legs and arms are becoming weaker. His weight is decreasing as he depends solely on special feed. i really dont think i would cope as well if i were in his shoes. Can you imagine how difficult life must be with MND? Never mind knowing there is nothing anyone can do to stop it taking over your whole life! we all take life for granted sometimes and the people around us we love. I dont want to think about life without my dad while he still has life because thats just it no matter how long we are put on this earth for and no matter what shaoe and form we are in it is still life and we should be thankful for that. Time is so very precious and every second counts so its important we cherish it. The reason for setting up this page is because financially im not in a position where i can do this on my own so with your help im hoping we can make a dream or a wish come true for him, something to focus on a look forward to and to raise more awareness of MND.
He is a massive Elvis presley fan and all his family & friends know he was once king of the dancefloor when it come to pulling off the elvis moves He also loved abit of ’suspicious minds’ on the karaoke. I would love to be able to take him to graceland and cross it off his bucket list, any help to make this possible would be really appreciated any extra funds raised would be donated to MND association to help others in need of help and support. More awareness needs to be made of this cruel disease. Please help make my fathers wishes come true 🙏🏻💕 every share and donation counts xxx
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- 5 months ago
Louise Hornby5 months ago
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Apr 2, 2018
£20 from Lou Roberts Davina’s neighbour£20 from Ruth Hillmore Davina’s patient£5 from Davina ‘s new patient
Apr 2, 2018
So sad to read your story my dad passed away from MND2006 and it first started in his mouth he had all the sameproblems as your dad hope you have great time in Memphis
Apr 1, 2018
£140 raised altogether in the Microblading raffle and a donation from myself. Hope you have the time of your lives ❤️
Moo and Jess Dog Lakey
Mar 31, 2018
Small donation, hope it gets you and your Dad to your target.Bless you both
Mar 28, 2018
Dear Louise, this is a little something from Angele and David in Richmond, Surrey. Your story touched us. We hope you both make it to Graceland.We are all rooting for your dad.All the best.
Mar 28, 2018
Good luck and best wishes to you and your father Lou.My Dad once sang with Eddie Cochran and Gene Vincent, he sadly passed from MND
Mar 28, 2018
Enjoy yourself Bobby..