Alfie Evans is our 20 month old son and is currently at Alderhay Hospital in the PICU. Alfie is suffering from epilepsy, or constant, chronic seizures.

Alfie was born healthy and on time. He was discharged after 3 days and from there our wait was over. We finally had him with us going home, our beautiful boy. This was a day we looked forward to for 9 months. He grew and fed well, but didn't meet milestones. Alfie was a very sleepy baby who loved his sleep and when he was awake he was an agitated baby.

After a couple of weeks we noticed he wasn't doing things he should e.g lifting his head up,looking at us for more than 20 seconds,grabbing his dummy,eating his hands,making gaga noises,etc. We also noticed he was doing a jerking movement with his hands, arms and legs and eyes would roll up. He always had his hands clenched into a fist too. He just didn't do what he should of been doing so Kate took him the doctors, overall three times, and doctors said he was lazy and a late developer.

Months went by and Alfie went backward instead of forwards. He started making more jerking movement and wasn't himself at all! This went on until Alfie got a chest infection. The infection led him to have a myoclonic jerking spasm.

This is when he was first put on life support. They told us in the new year that Alfie wasn't going to make it so we had him christened. We thought we were going to lose our son!

But Alfie had other ideas, he managed to beat the infection and start breathing on his own. He came off the vent in March and was on cpap. He was moving and trying to open his eyes!

Unfortunately he caught another infection so ended up back on the vent. Even though Alfie came back from this same thing before and he does show signs now like moving, yawning, stretching, Alderhay want to turn his life support off!

on monday the 23rd of april Alfies life Support was switched off at 9pm Alfie started to breat of his own with a little help from a breathinf mask

4 days Alfie berathed of his own for.. he truly was a fighter

sadly alfie passes away at 2.30am on the 28th of april

rest in peace little man

AFLIES ARMY

💙💜💙💜

Sh