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Laura (Liams Cousin) raised £38,142.27 from 1037 supporters

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Closed 15/05/2019

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£38,142
raised of £300,000 target by 1037 supporters

    Iʼve raised £38,142 to prolong life past 1 year! help with Liam's fight against the brain tumour DIPG #love4littleliam

    Newark-on-Trent, Newark, UK
    Funded on Wednesday, 15th May 2019

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    Story

    #love4littleliam

    This is Liam, he is just 5 years old and at the start of May 2018 we had the devastating news that he has an incurable and inoperable brain tumour giving Liam up to a year to live. This cancerous brain tumour is called Diffuse Intrinsic Pontine Glioma(DIPG). Just one child a year would develop this terrible disease at the Queens Medical Centre Nottingham. There is currently no cure. DIPG grows in the area of the brain that controls sleep, respiration, swallowing, bladder control, hearing, taste, eye movement, facial expressions, facial sensation, and posture. Growing in this area makes surgery to remove the cancerous tumour impossible. However tests and trials are being carried out in a handful of places around the world to work towards a cure, or extend the length of the prognosis past a year. This cancer usually only affects children under the age of 10.

    **only 20-30 children develop DIPG in the UK per year**

    Liam is the most caring and loveable little boy you could ever meet. He is very intelligent for his age and amazes us everyday. He loves anything car related, Big Ben, The solar system, dancing, The Minions and of course Nottingham Forest FC! He is the best big brother to Evie and thinks the world of her. You only have to meet him once and you will be best friends for life. You will never meet a happier little boy, who will do anything for anyone just to make them smile. We have got to keep fighting for our gorgeous boy and we need all the help we can get. Our family is doing everything possible, amid the whirlwind of disbelief we find ourselves in, to find alternative therapies and options that may work either outside or alongside the NHS. It's our only hope of helping Liam and if we have hope, we can keep going.

    We have set up this Just Giving page to help Liam, his little sister Evie (3) and his family raise as much needed funds as possible for specialised trials and treatment across the globe to remain within hope that something can be done. After plenty of research we have seen that most of these treatments cost up to £35,000 a time. Fundraising is the only chance and we have to try to make this happen.

    Currently the only treatment is radiotherapy within the NHS in the United Kingdom, this only shrinks the size of the tumour before it comes back again, only with radiotherapy will Liam live for up to a year.

    We have seen so many stories of families travelling to Mexico, USA, Germany and others for treatment, and with your generous donations we aim to do just that! These are some of the treatments we have found;

    - A possible treatment called GD2 CAR-T to be used by Stanford University School of Medicine.

    - IOZK clinic in cologne Germany.

    As a family there is not a lot anyone can do to make this situation any better. What we want to do is try to ease the financial worries where possible. We would like to use some money to allow Liam and his family to make special memories together by giving them a special family holiday.

    Thank you for taking the time to read this. We appreciate everything you are doing to help us achieve our goals. If anyone can do any fundraising or has any suggestions please let us know.

    Updates

    30

    • Laura (Liams Cousin)6 years ago
      Laura (Liams Cousin)

      Laura (Liams Cousin)

      6 years ago

      This is by no means the end of Liam’s story. His short and incredible life will help others suffering from DIPG and we hope to have an involvement with raising awareness in the future of this cruel and aggressive illness. Thank you to every single person that helped along the way with Liam and with raising funds for his treatment options. It is truly appreciated and meant more to the family than you may realise. So many special moments were had and wonderful experiences shared. Thank you. #Love4LittleLiam 💛

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    • Laura (Liams Cousin)6 years ago
      Laura (Liams Cousin)

      Laura (Liams Cousin)

      6 years ago

      He received various treatments in Nottingham and Birmingham but, ultimately, we had too little time and the cancer spread. Over the last month or so it was tough for the little guy but he battled bravely to the end and continued to do what he always did and that is to spread and share his love. Let’s all make sure we hug our loved ones a little bit tighter today and make the most of what we all have....

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    • Laura (Liams Cousin)6 years ago
      Laura (Liams Cousin)

      Laura (Liams Cousin)

      6 years ago

      It is with a heavy heart and tearful eyes that we have to announce that our beautiful and brave little Liam passed away peacefully in his sleep last night. Liam was 6 years old and spent his last few days surrounded by his loving family and friends at Rainbows Hospice in Loughborough. We always knew it would be a tough fight but with the strength and support of the local community we were able to face it and do whatever we could to help find a treatment....

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    7 years ago

    Laura (Liams Cousin) started crowdfunding

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    Page last updated on: 3/7/2019 13.11

    Supporters

    1037

    • Anonymous

      Anonymous

      Mar 7, 2019

    • Simon Russell

      Simon Russell

      Feb 7, 2019

      £10.00

    • Greenzone Facilities Management

      Greenzone Facilities Management

      Jan 2, 2019

      We couldn't think of a better cause to donate our Christmas Raffle money to from all the staff and directors at Greenzone

      £548.00

    • Anonymous

      Anonymous

      Dec 29, 2018

    • Anonymous

      Anonymous

      Dec 5, 2018

    • Becky Rees

      Becky Rees

      Dec 3, 2018

      Proceeds from Becky’s Bakes Design a cake competition for Little Liam x

      £100.00

    • Becky Rees

      Becky Rees

      Dec 2, 2018

      Donating proceeds from Becky’s Bakes Design a Cake competition for kids in memory of Little Liam. Sending warmest wishes and hope this will help a little in your continued support for DIPG research

      £100.00

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    Laura (Liams Cousin)

    Laura (Liams Cousin)

    Newark-on-Trent, Newark, UK

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