Last year my little girl Mia was diagnosed with a rare genetic neurological disorder called Rett Syndrome. It affects 1 in 12,000 girls, a condition that affects all parts of your body, especially coordination.
Unfortunately, Mia lost all skills that she once had meaning shes now completely dependent on everyone around her.

She will never get the opportunities and chances that others do, but she still makes us proud every day. She may never walk and talk as these are main dependencies that are most likely never to come back again.

Mia experienced all the symptoms very early on and was unfortunate to loose everything including her swallow meaning shes completely nil by mouth. As shes lost all coordination skills she cant use hands etc which makes her unable to play or have any sort of entertaining play time.

Mia has started to develop a communication skill with her eyes and speaks through eyes. There is a technological equipment called the eye gaze which is a small camera attached to a device that picks up a sequence in the eye to initiate what the person wants or is fixated on.

Mia has started to use this device in school, she’s going doing really well and it allows her to play games with her eyes. This achieves brain development and relieves her sense of boredom, as mentioned there isn't anything Mia can do to be entertained.

Eventually Mia will be able to communicate through this device, which would make our lives better. It would reduce her frustration and give her the best quality of life.

This aid is £17,000 and ultimately we would love to give Mia this opportunity of life. Sadly, it's not something we can get funding for from the government. As a mother I have no choice but to find it ourselves, my daughter didn’t ask for this way of life, this is her normal and I want to feel my daughter is really communicating with me.

Mia is my little girl, sweet, innocent and I wish I could provide her with anything that could make her life more enjoyable.

I was reluctant in setting up a just giving page, as I’m a very proud and humble person, but I will do anything for my princess. I know it’s tough for everyone with the cost of living crisis right now but all I ask is if you could spare any little amount it would be greatly appreciated.
It will help give our baby girl an element of life that she won't ever experience verbally.
Thank you for reading.
Lowri (Mummy of a very special girl Mia Moo)
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