Story
Having MEN2A has changed my life completely. No longer can I teach which is devastating but I also have terrible fatigue and tiredness which means I cannot do anywhere near what I used to. I cried a lot. I still do BUT I needed to fight so I have.
I had medullary thyroid cancer at he she of 17 and then 23 years I discovered that my hospital had misdiagnosed me for years and I actually had a genetic defect on my RET gene. I had 100% chance of the thyroid cancer, 50% chance of pheocromocytoma, tumours on my adrenal glands and 25% change of parathyroid disease. When my cancer was discovered, I was stage 4 and it had spread to the lymph nodes in my neck so they removed them, my thyroid nd parathyroids. At age 41, the diagnosis of MEN2A was made when baked potato sized were found. I am corticosteroid dependent and I cannot fight infection due to a compromised immune system. I carry an emergency injection as I am at risk of an adrenal crisis which can be lethal. I lost my teaching career and sense of self.
I have started a business which I believe is unique but I desperately need a place to work. The cheapest quote I have is £4500 for a warm insulated shed with power and light. It will enable me to feel less worthless and pointless. I've lost all my confidence and I need it back. I know it is a lot to ask and I absolutely hate asking but I need the help so much as I only receive £76 a week from the government as ESA.