Weʼve raised £1,760 to Zac's Space. Support us on our pier to pier walk to help raise money for this amazing family's dream to come true
- Clacton Pier to Walton Pier
- Disability support
- Time left
- Funded on Thursday, 24th November 2016
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When Zac was 3 weeks old, Amy and Shane received the heart breaking news that he had Cystic Fibrosis a life limiting, incurable disease affecting internal organs, especially the lungs and digestive system. Sadly they received more devastating news the following year, that Zac was diagnosed with Angelman Syndrome and Epilepsy. This is a rare genetic neurodevelopmental disability, jerky movements, seizures, sleep disturbance and no verbal communication. This was so painful for them to take in, they used all the strength they had to adjust and learn everything they could to help Zac.
Their dream is to create an open plan living space downstairs. This would include a ramp out of the front of the house straight into Zac’s space, creating a bedroom and wet room for Zac with a hoist running straight across. As he is non weight bearing they would widen doorways for his equipment to fit through and form a kitchen/diner where they could all be together at meal times with Zac, which is not possible at the moment. This is such a dream and would make life so much easier for Zac, and them, as a family.
Zac has aggressive gastro reflux, frequently vomiting throughout the day. This new layout would mean that they wouldn’t have to try and rush upstairs with Zac, as everything he needs would be on the same level with the appropriate equipment. Zac could then have more equipment and move around downstairs. This would make physio sessions and Zac’s physical development progress immensely.
A grant for Zac to get this work done covers only part of the cost towards this, so we hope to raise more funds to help this amazing family's dream to become a reality.
Lucy Bareham9 months ago
We did it!!!! A huge thank you to everyone for sponsoring us. It really does mean a lot. The final figures are still being verified but it's looking like we have raised over £500. Absolutely fantastic. We completed the walk in just over 3 hours. Not bad for 4 mums with 9 children between them :) It was harder than we imagined but so worth it. The tea, doughnut & prosecco breaks certainly kept us going! Thank you again to everyone for supporting us and, of course, Zac, who we all love very much 💙💙 Here's a pic of us at the end!
- Emma McCulloch
- Laura Willmore
- Amy Morrison
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About the fundraiser
Clacton Pier to Walton Pier
Myself, Laura, Emma & Kim are taking on a challenge and we would love your support! We will be walking from Clacton Pier to Walton Pier on Sunday 16th October 2016 to raise money for our friend’s Amy and Shane Morrison’s son, Zac, for the living space they so desperately need.
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