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Amelia's Defiance Fund raised £40,040 from 803 supporters

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Closed 29/08/2020

800%
£40,040
raised of £5,000 target by 803 supporters

    Weʼve raised £40,040 to help fund our daughter's rehabilitation following a life threatening brain injury.

    Marlow
    Funded on Saturday, 29th August 2020

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Amelia's Defiance fund

    On 3rd Jan 2020 our  bubbly, beautiful and intelligent 17 year old, Amelia, collapsed with an AVM - a rare non malignant brain tumour - which caused a massive brain bleed and brain damage. 

    We did not know she was ill, there was no warning, she displayed no symptoms - she simply collapsed.

    It is only thanks to the super powers of the Air Ambulance, paramedics and the team of neurosurgeons, doctors and nurses that Amelia is alive today. They saved her. But now Covid-19 threatens to undo their miraculous work.

    An emergency craniotomy has left her with a large part of her skull missing, as a result of this she has now developed a syndrome which causes her motor and cognitive abilities to increasingly deteriorate.  The current solution is  to lie her flat for most of the day which means she cannot have all her much needed rehab. Yet the clock on her NHS rehab budget continues to count down. The rehab unit she is in want to discharge her into a care home to await her procedure  and try to "save" her allocated budget. This is not an option for our eldest baby girl.

    The only real cure is an operation to have the skull replaced - a cranioplasty. In NHS terms, this procedure is elective, and in the current Covid-19 crisis elective operations are suspended so we are at an impasse.

    Despite all her challenges Amelia's defiance and determination to overcome is inspiring. Amelia cannot talk or walk, yet she can smile at those she loves, gives a thumbs up or down to questions, she is learning to dress herself, brush her hair and her teeth. She strokes the face of her father and siblings when they video call - they hasn't seen her in a month because her unit is in Covid-19 lockdown so only I, her mum, can visit.

    Her prognosis has the potential to be good - yet she needs a cranioplasty and rehabilitation. The former cannot be performed because of Covid-19 suspended surgeries, the latter because she has not had the former.

    There is a long road ahead - she will need physio therapy, occupational therapy, speech and language therapy, potentially a wheelchair for a sustained period of time, and maybe support into her adulthood. A brain injury is like a thumb print - each is unique. The outcome different every time.

    Amelia is at the start of her young adult life and deserves every opportunity life has to offer - or at the very least not to have it snatched away because she happened to fall dangerously ill at the start of a pandemic.

    Updates

    5

    • Amelia's Defiance Fund2 months ago
      Amelia's Defiance Fund

      Amelia's Defiance Fund

      2 months ago

      This has been a real red letter week for Amelia. She has walked 10metres with the aid of a frame and the physios plus she has started to tentatively say a few words. It is still really early days - we are only 3 weeks post Cranioplasty - but she continues to defy the odds and her clinicians expectations. Thank you for your ongoing love and support. xx

      Share this update to help us raise more

    • Amelia's Defiance Fund3 months ago
      Amelia's Defiance Fund

      Amelia's Defiance Fund

      3 months ago

      Amelia has had a tiring week but already there are signs that Amelia is becoming Amelia again. Since the operation she is more alert, aware and engaged. However, we are under no illusion as to the challenges she now faces. Speech has yet to return, mobility is still limited but there are positive signs. Only time and a lot of hard work will tell. Amelia has never been work shy and we are in awe of her resilience and determination to succeed. Thank you for your ongoing support, positivity and love

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    • Amelia's Defiance Fund3 months ago
      Amelia's Defiance Fund

      Amelia's Defiance Fund

      3 months ago

      Amelia has today had her cranioplasty and is ok. The operation was planned to be 2.5 hours but ended up 6 hours long. The surgical team are pleased with the operation and Amelia's condition. She has been moved to the high dependency unit rather than the intensive care unit - a great sign of her recovery. She may require a blood transfusion but this is not a bad thing. When she was coming to she was groaning which is really great considering she has be mute since 3rd Jan. The next 72 hours are the most critical but she is in the best care.

      Share this update to help us raise more

    5 months ago

    Amelia's Defiance Fund started crowdfunding

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    Page last updated on: 8/15/2020 12.53

    Supporters

    803

    • Sarah Mcdonald

      Sarah Mcdonald

      Aug 15, 2020

      Best wishes for a speedy recoverySimon and Sarah Mcdonald

      £40.00

    • Ewan Jones

      Ewan Jones

      Aug 5, 2020

    • Anonymous

      Anonymous

      Aug 3, 2020

      From the Marlow 89ers

      £1,240.00

    • Anonymous

      Anonymous

      Jul 28, 2020

      With best wishes from Irene, Rhodri's gran

      £10.00

    • An Anthony

      An Anthony

      Jul 27, 2020

      Wishes for Amelia and family

      £30.00

    • Nan and Bernard Coomey

      Nan and Bernard Coomey

      Jul 16, 2020

      Best Wishes and love for your recovery. xxx

      £20.00

    • Anonymous

      Anonymous

      Jun 30, 2020

    Great people make things happen

    Do you know anyone in need or maybe want to help a local community cause?

    Create you own page and donʼt let that cause go unfunded!

    About Crowdfunding
    About the fundraiser
    Amelia's Defiance Fund

    Amelia's Defiance Fund

    Marlow

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