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Kerry Handley

Kerry Handley is crowdfunding

85%
£93,649
raised of £110,000 target by 2054 supporters

Weʼre raising £110,000 to help fund life changing spinal surgery for our little girl. Anything over £90k will cover JG fees, aftercare appointments, scans, physio

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Our beautiful little girl Macy is just 12 years old. She is incredibly creative, a skilled artist, a thrill seeker, a naturalist, an ice skater, a member of Mensa and diagnosed with ASD/Asperger's.

In July 2019 we noticed a lump on Macy's back near her spine. An x-ray uncovered abnormal curves in her spine as well as a rotation, not long after, she was diagnosed with idiopathic scoliosis. The consultant provided her with a brace which she needed to wear for 20 hours per day. The brace was uncomfortable, restrictive and rubbed on her neck, in between her legs and under her arm which triggered her severe sensory issues which over time has massively impacted on her mental health. Despite this, Macy persevered and tolerated the brace as she, like us, hoped that it would prevent the need for an operation.

In July 2020 an x-ray showed no significant change to Macy's curves, we were happy that the brace seemed to be working and after some therapy sessions, Macy was able to manage her sensory issues a little better.

Last week we had a further x-ray the results of which have been devastating. Macy's top curve has increased from 30 degrees to 44 degrees and the bottom curve from 28 degrees to 37 degrees. We have been told that this is a significant and abnormal rate of increase which has pushed Macy in to the realms of spinal fusion surgery should there be further increase, being at the beginning of her growth spurt this is highly likely.

The NHS option is to continue to brace, hope that there is no damage to Macy's internal organs and spinal cords then when her spine stops growing it is likely she will need spinal fusion which involves fixing metal rods to the length of her spine, due to her having a double curve this will restrict her movement and leave her with a huge scar from the back of her neck down to the bottom of her back.

There is however an alternative. Vertebral Body Tethering (VBT) which in essence is an internal brace. The recovery is much quicker than fusion, back to school after just 6 weeks, her range of movement will be near normal with minimal impact on her future and the scarring is barely noticeable. This is a break through treatment widely used outside the UK which is proactive and can prevent the need for spinal fusion. VBT had been featured on BBC news. https://www.bbc.co.uk/news/uk-wales-43642026. Many parents have been forced to take their children outside of the UK for treatment however there is an amazingly talented surgeon here in the UK who is very experienced and has had high success with many patients.

VBT has limitations and a specific selection criteria which at the moment Macy fits. Unfortunately, further increase to the curvature of her spine or waiting longer could reduce the flexibility of her spine and push her outside the possibility for VBT so time is of the essence. We must find the funds to pay for the surgery now before it is no longer an option leaving Macy at higher risk of other complications and the only option of spinal fusion.

We haven‘t taken this decision lightly and are confident that VBT offers Macy the best chance of growing up to have a close to normal life and be able to enjoy all of the things other girls her age enjoy.

Our healthcare insurance will not cover the surgery as scoliosis is classed as as a chronic condition.

We appreciate it is a massive ask and not one we are comfortable with but we will do anything for our little girl so please, give what you can and help Macy live her best life.

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Updates

21

  • Kerry Handley14 hrs ago
    Kerry Handley

    Kerry Handley

    14 hrs ago

    We've been advised to adjust our target to £110k as the original £90k target covers surgery & hospital stay immediately after. Macy's spine will grow until she's around 15 therefore we have 3 years of consultations, scans, physio & possible surgical adjustments. The extra £20k will help cover the JustGiving fees (currently around £3500) & contribute towards all of the additional costs associated with Macy's aftercare. With a couple more fundraisers on the horizon we thank you for your continued support. Countdown to 8th June has begun! x x

    Share this update to help us raise more

  • Kerry Handley3 days ago
    Kerry Handley

    Kerry Handley

    3 days ago

    Amazing effort by our amazing colleagues. Speed marching in boots and armour for 1 hour and 40 minutes covering 9.32 miles! Thank you for helping to raise funds for Macy 🙌

    Update from the Page owner

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  • Kerry Handley5 days ago
    Kerry Handley

    Kerry Handley

    5 days ago

    #macysvlog 5

    Share this update to help us raise more

2 months ago

Kerry Handley started crowdfunding

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Page last updated on: 5/11/2021 21.38

Supporters

2054

  • Anonymous

    Anonymous

    May 11, 2021

    £20.00

  • Anonymous

    Anonymous

    May 11, 2021

  • Dave Byrne

    Dave Byrne

    May 11, 2021

    Raffle! Cheers

    £20.00

  • Andy Mandefield Raffle

    Andy Mandefield Raffle

    May 11, 2021

    RAFFLE - great idea

    £50.00

  • RAFFLE Mary Print

    RAFFLE Mary Print

    May 11, 2021

    £10.00

  • Charly

    Charly

    May 11, 2021

    raffle

    £10.00

  • Anonymous

    Anonymous

    May 11, 2021

    £20.00

Kerry Handley

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About the fundraiser
Kerry Handley

Kerry Handley

Coventry

Thanks to some incredibly generous people we've reached the £90k original target. This covers the cost of the Consultant Surgeon, required 2nd surgeon, anaesthetist, VBT system, hire of St George's operating theatre & associated costs during Macy's hospital stay after surgery.

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