Matilda is a funny, caring and adorable girl who has Spinal Muscular Atrophy type 3. Diagnosed after her second birthday, Matilda now 4 years old is very determined not to let her condition hold her back. We want to support Matilda’s independence by providing and maintaining the equipment she needs as a child living with Spinal Muscular Atrophy.

We are continuing to fundraise to help meet Matilda’s ever changing needs. At the moment she requires equipment including a walking frame and a self-propelling standing frame which can be kept at home for daily home physio. We also hope to raise enough to assist with the costs of wheelchair maintenance. We are also still continuing to adapt our home to enable Matilda to have independence and access as possible, as at the moment she can still not gain access our home with in a wheelchair.

Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It causes progressive muscle weakness and loss of movement due to muscle wasting (atrophy). For Matilda this SMA is currently affecting crawling, walking and standing ability, arm and hand strength we are also monitoring her closely for signs of scoliosis. Which is why allowing her time on her feet either stood in a frame or trying to walk is so important for the health of her spine and hips.

However, SMA does not affect a person's ability to think, learn, and build relationships with others, hence why we are determined to keep her as independent as possible.