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Rachel Jamieson

Rachel Jamieson is crowdfunding

0%
£480
raised of £4,000 target by 17 supporters

Weʼre raising £4,000 to We are continuing to fundraise to help meet the remaining cost of a Permobil 450 powered chair

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Matilda is a funny, caring and adorable girl who has Spinal Muscular Atrophy type 3. Diagnosed after her second birthday, Matilda now 4 years old is very determined not to let her condition hold her back. We want to support Matilda’s independence by providing and maintaining the equipment she needs as a child living with Spinal Muscular Atrophy.

We are continuing to fundraise to help meet Matilda’s ever changing needs. At the moment she requires equipment including a walking frame and a self-propelling standing frame which can be kept at home for daily home physio. We also hope to raise enough to assist with the costs of wheelchair maintenance. We are also still continuing to adapt our home to enable Matilda to have independence and access as possible, as at the moment she can still not gain access our home with in a wheelchair.

Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It causes progressive muscle weakness and loss of movement due to muscle wasting (atrophy). For Matilda this SMA is currently affecting crawling, walking and standing ability, arm and hand strength we are also monitoring her closely for signs of scoliosis. Which is why allowing her time on her feet either stood in a frame or trying to walk is so important for the health of her spine and hips.

However, SMA does not affect a person's ability to think, learn, and build relationships with others, hence why we are determined to keep her as independent as possible.

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Updates

1

  • Rachel Jamieson8 months ago
    Rachel Jamieson

    Rachel Jamieson

    8 months ago

    A big thank you to everyone who has donated to Matilda’s Just Giving page. Today Matilda trialed another standing frame. It is the best we’ve tried so far, but it needs further adjustments to combat the pressure on her knees. Unfortunately this may involve bespoke parts but we’re trying all options first. We are also hoping to order Matilda a new larger Manual wheelchair very soon. It will be another Zippee Simba as Matilda can self propel it well due to the easy reach breaks and lightweight wheels xxx

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1 year ago

Rachel Jamieson started crowdfunding

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Page last updated on: 10/31/2019 14.09

Supporters

17

  • Anonymous

    Anonymous

    Oct 31, 2019

    £30.00

  • Charlotte Baker

    Charlotte Baker

    Oct 28, 2019

    You’ve done amazing with your fund raising so far, well done!!!! Lots of good wishes sent your way for a speedy target smash!!! 💕🙏🏼

    £20.00

  • Jo Morton

    Jo Morton

    Oct 28, 2019

    Hope your beautiful brave daughter gets her wheelchair and hopefully continues to do well with the medication and can continue having it long term x

    £10.00

  • Sallie Brodie

    Sallie Brodie

    Oct 28, 2019

    £20.00

  • Anonymous

    Anonymous

    Oct 28, 2019

    Hope you get to your goal soon x

  • R Spratt

    R Spratt

    Oct 28, 2019

    £50.00

  • Anonymous

    Anonymous

    Jul 30, 2019

    Donating on behalf of Laura’s amazing “Come Dine With Me” evening.. happy to donate and help Matilda in any way possible. Best Wishes Angie Readey xx (RW mum)

    £20.00

Rachel Jamieson

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About the fundraiser
Rachel Jamieson

Rachel Jamieson

York

Mum to Matilda

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