Weʼve raised £6,652 to help fund the Tobii communication technology to give Emma her voice back.
- London, United Kingdom
- Time left
- Funded on Thursday, 18th May 2017
Crowdfunding is the new way to raise money for a personal cause on JustGiving.
Most of you reading this are good friends of Emma and for some of you this is the first time you will have heard her story.
I have known Emma since 2003 when we both started working as junior doctors in Bournemouth Hospital.
We shared long days and nights on the wards as well as many fun times including nights out, ski holidays and me cheering her on when she completed the London Marathon.
All the normal activities you do as a young active person with your life ahead of you.
In 2015 my lovely friend was just about to start her first post as a Consultant in ITU medicine at Portsmouth Hospital.
She had spent years of hard work, studying and long hours caring for the most critically ill patients in Dorset, sacrificing her own comfort to attend to theirs.
Just before starting her well deserved post she began to develop a weakness in her hand.
Sadly she was diagnosed with Motor Neurone Disease and rapidly lost the use of her arms, legs and facial muscles.
Last September she had severe breathing difficulties and was admitted to ITU in Southampton Hospital where she required a tracheostomy and ventilator to allow her to breath but left her unable to speak.
She is now at home requiring 24 hour care and can only communicate via an alphabet board which is painfully slow and frustrating for her.
Her family having been researching communication aids and would desperately love her to have access to Tobii eye tracking systems.
This technology would allow Emma to use her eye movements to speak using a computer generated voice and vitally give her the autonomy and independence she needs and which we all take for granted.
This technology costs around £6000.
I will be running the Hackney Half Marathon on the 30th of April in support of Emma's cause.
I ask you to be as generous as you can to help Emma regain her voice.
Thank you for taking the time to listen to her story.
Marie Desouza2 months ago
Thank you so much to everyone who supported me and donated to Emma's fund. I completed the half marathon last Sunday. I'm so pleased we exceeded the target and can provide Emma with much needed equipment. Thank you again! Marie xx
Share this update to help us raise more
Marie Desouza started crowdfunding
Leave a message of support
May 15, 2017
Well done Marie!
May 8, 2017
Huge congrats for a fantastic achievement... next stop the London Marathon?? x
May 8, 2017
Well done on the race! Thank you for doing this for Emma! Thinking of you Em x
May 7, 2017
Emma is an extraordinary person and colleague. We believe in her and support her courageous journey. She has so many committed friends in her critical care community.We are here for her. XX
May 6, 2017
What a wonderful thing you are doing for Emma. My family are so grateful for all the support x
May 6, 2017
Hi Marie This is such a sad story but so wonderful that you are doing the half marathon to raise money for her!I hope she gets the equipment and some extra with the money raised Good luck xx
May 2, 2017
Well done on your amazing marathon achievement and running for such a great cause too. Love Jade x
Crowdfunding stories like this
Great people make things happen
Do you know anyone in need or maybe want to help a local community cause?
Create you own page and donʼt let that cause go unfunded!Start a new PageAbout Crowdfunding