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Marie Desouza raised £6,652 from 189 supporters.


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Closed 18/05/2017



£6,652raised of £3,000 target by 189 supporters

    Weʼve raised £6,652 to help fund the Tobii communication technology to give Emma her voice back.

    London, United Kingdom
    Funded on Thursday, 18th May 2017

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    Most of you reading this are good friends of Emma and for some of you this is the first time you will have heard her story.

    I have known Emma since 2003 when we both started working as junior doctors in Bournemouth Hospital.

    We shared long days and nights on the wards as well as many fun times including nights out, ski holidays and me cheering her on when she completed the London Marathon.

    All the normal activities you do as a young active person with your life ahead of you.

    In 2015 my lovely friend was just about to start her first post as a Consultant in ITU medicine at Portsmouth Hospital.

    She had spent years of hard work, studying and long hours caring for the most critically ill patients in Dorset, sacrificing her own comfort to attend to theirs.

    Just before starting her well deserved post she began to develop a weakness in her hand.

    Sadly she was diagnosed with Motor Neurone Disease and rapidly lost the use of her arms, legs and facial muscles.

    Last September she had severe breathing difficulties and was admitted to ITU in Southampton Hospital where she required a tracheostomy and ventilator to allow her to breath but left her unable to speak.

    She is now at home requiring 24 hour care and can only communicate via an alphabet board which is painfully slow and frustrating for her.

    Her family having been researching communication aids and would desperately love her to have access to Tobii eye tracking systems.

    This technology would allow Emma to use her eye movements to speak using a computer generated voice and vitally give her the autonomy and independence she needs and which we all take for granted.


    This technology costs around £6000.

    I will be running the Hackney Half Marathon on the 30th of April in support of Emma's cause.

    I ask you to be as generous as you can to help Emma regain her voice.

    Thank you for taking the time to listen to her story.



    • Marie Desouza1 year ago
      Marie Desouza

      Marie Desouza

      1 year ago

      Thank you so much to everyone who supported me and donated to Emma's fund. I completed the half marathon last Sunday. I'm so pleased we exceeded the target and can provide Emma with much needed equipment. Thank you again! Marie xx

      Update from the Page owner

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    1 year ago

    Marie Desouza started crowdfunding

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    Page last updated on: 5/15/2017 10:11 PM



    • Lizzie Greenberg

      Lizzie Greenberg

      May 15, 2017

      Well done Marie!


    • Lexi Nicol

      Lexi Nicol

      May 8, 2017

      Huge congrats for a fantastic achievement... next stop the London Marathon?? x


    • Linda Law

      Linda Law

      May 8, 2017

      Well done on the race! Thank you for doing this for Emma! Thinking of you Em x


    • Anonymous


      May 7, 2017

      Emma is an extraordinary person and colleague. We believe in her and support her courageous journey. She has so many committed friends in her critical care community.We are here for her. XX

    • Julia Fitzgerald

      Julia Fitzgerald

      May 6, 2017

      What a wonderful thing you are doing for Emma. My family are so grateful for all the support x


    • Preeti De

      Preeti De

      May 6, 2017

      Hi Marie This is such a sad story but so wonderful that you are doing the half marathon to raise money for her!I hope she gets the equipment and some extra with the money raised Good luck xx


    • Jade Tan

      Jade Tan

      May 2, 2017

      Well done on your amazing marathon achievement and running for such a great cause too. Love Jade x


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    Marie Desouza

    Marie Desouza

    London, United Kingdom

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