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Marie Fitzgerald raised £230 from 19 supporters

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Closed 22/08/2018

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£230raised of £449 target by 19 supporters

    Weʼve raised £230 to transform Marie's daughter's health - help buy a wrist-worn epilepsy sensor

    Funded on Wednesday, 22nd August 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    Grace (my daughter) has been diagnosed with migralepsy and photo-sensitive epilepsy in 2017-2018. Grace cannot remember when she has a seizure. Grace has nocturnal seizures during her sleep too, but recording any of her seizures is a challenge. This equipment that I am crowdfunding for would be able to record all of her seizures when her heartbeat changes before a seizure begins. The equipment would also help Grace as she is at risk of SUDEP (Sudden Unexpected Death in Epilepsy). The device with a warning would alert anyone who is near Grace.

    Would you consider £1 donation or more?

    You can donate by clicking the 'donate button.'

    Thank you.

    P.S I have approached Grace's GP and consultant for funding for this equipment but it has been refused. Grace has findings on her EEG and MRI of abnormalities.

    This is the equipment https://www.epilepsyalarms.co.uk/product/brio/

    Further information: these are the triggers that can affect Grace with photosensitive epilepsy

    Bicycle lights (red and white)

    Ceiling fans

    Christmas lights that flash

    Computer screens

    Flashing novelty badges

    Interactive whiteboards

    These are some examples of patterns that could be seizure triggers:

    High contrast patterns such as black and white stripes

    Striped or patterned materials and walls

    Patterns in some television programmes, video or electronic games

    A moving escalator

    Strobe lights

    Looking directly at certain patterns caused by sunlight could be a seizure trigger for some people. Examples of these situations are:

    Sunlight through slatted blinds

    Sunlight through trees, viewed from a moving vehicle

    Sunlight reflected off moving water or off snow

    Sunlight through moving leaves

    Sunlight through railings, as you move past them

    Updates

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    Marie Fitzgerald

    Updates appear here

      5 months ago

      Marie Fitzgerald started crowdfunding

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      Page last updated on: 8/15/2018 8:15 AM

      Supporters

      19

      • Lorraine Donington

        Lorraine Donington

        Aug 15, 2018

        £5.00

      • Anonymous

        Anonymous

        Aug 14, 2018

        £20.00

      • Jane Colbert

        Jane Colbert

        Aug 13, 2018

        £5.00

      • Angie Graham

        Angie Graham

        Aug 13, 2018

        £10.00

      • Erica Clarke

        Erica Clarke

        Aug 13, 2018

        Good luck, hope Grace can get this essential piece of kit to enhance her life and minimize her difficulties x

        £5.00

      • Gwen Wright

        Gwen Wright

        Aug 13, 2018

        Good luck Grace, from Kim's Aunty Gwen xxx

        £5.00

      • Kim DONINGTON

        Kim DONINGTON

        Aug 13, 2018

        Good luck in your quest for raising funds Marie. I hope you get to buy this equipment very soon x

        £20.00

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      About Crowdfunding
      About the fundraiser
      Marie Fitzgerald

      Marie Fitzgerald

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