Isaiah Jenai Gordon was born on the 7th September 2016 after a very traumatic birth. His condition on birth was described as blue and floppy.
Since then Isaiah has been in and out of hospital. He has been in pain and unable to feed or settle peacefully. He recently spent twelve weeks in hospital and the doctors discovered that he has a complex condition West Syndrome which is a rare and severe form of epilepsy which also causes intellectual disabilities, combined with Dystonia a movement disorder that can cause unusual awkward and sometimes painful postures.
Isaiah will need specialist equipment which will help him to be comfortable and keep his head upright as he cannot do this for himself. His car seat alone has cost £1150 and he is growing fast which means he will need a specially adapted pushchair and then a specially adapted wheel chair to help move him around.
Isaiah is a wonderfully content and smiley baby. He has two teeth and when he is not in pain he chuckles his way through life. We are appealing to you to help make that life pain free and to give Isaiah the chance to be able to look around and see the world from an upright position. This will be possible with the specialist equipment he needs to help hold his head.
Thank you for your support.