I am interested to raising funds to Donate to a charity close to my heart. This charity has been very supportive to my family and has been an invaluable source of information for my daughter who has Ectodermal Dysplasia.

The Ectodermal Dysplasia Society is a charity dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED). They work together with people who have ED, their families, researchers, health and other professionals to develop and share expertise, increase awareness and understanding, and assist with the day-to-day management of ED.