My name is mark and I'm the full time carer for my beautiful wife victoria.
Victoria has a very rare medical condition called jackhammer esophagus and is fed daily via a peg system directly into her stomach,as her esophagus doesn't work.
If she attempts to eat normal food then this will certainly trigger painful spasms which if I can't get under control at home,then will be a trip to the hospital a and e,followed by a long stay.
This is killing me on a daily basis to see her like this and I'm asking all the lovely people out there if they can help us achieve our goal and dreams.victoria was diagnosed with jackhammer esophagus in 2015 and we,along with the medical services have been looking for an answer for her treatment ever since.
I would do anything to take the pain away for this strong woman.! She's only 34 years old and takes vast medication on a daily basis just to try and live pain free.
The operation in Houston will involve a Hellas miotamy which means they will cut the muscles in her esophagus and fit a sleeve on the inside of her esophagus so food can pass normally into the stomach. If we can't get the operation for some reason or another then the next step will be a tube going directly into her bowel to bypass her stomach altogether.
I love this girl to peices and hope the good people of the UK will help us get our lives back to normal (please).
If we don't make all the money for the operation then we will put it all towards making modifications to our home ie a stairlift as we have 5 flights for her to climb to get up to our flat,she will also need a hoist to get her in and out of the bath/shower as this is a difficult task sometime,due to her limitations with the outside world,I would also get her a mobility device of sorts,so she can enjoy the beach where we live.
At the moment,we are confined to 4 walls as the decent and climb of the stairs is just too much for her at the moment.! Thanks for looking.
Love to you all.!!
Mark X