We're raising money to help baby Marley and his family!

This is Marley's story...

One-year-old baby Marley was diagnosed with a life-threatening disease which gives as many as 95% of similar cases a life expectancy of only 18 months. Marley was diagnosed with Type 1 Spinal Muscular Atrophy (SMA), a genetic disorder which makes his muscles extremely weak, preventing him from performing basic actions such as sitting and moving his arms and legs. The condition, which is comparable to motor neurone disease (MND) affects the nervous system and has caused numerous breathing difficulties.

He's been receiving a treatment called spinraza (nusinersen) which means an injection every two weeks for six months, but it has no guarantee in prolonging is life. After his most recent treatment of spinraza and with daily exercises, he's shown some encouraging signs of improvement and has visible movement in his arms and hands...

Marley’s parents, Rosie-Mae Walton and Wes Powell were informed about a treatment in America, called Zolgensma, which could dramatically prolong Marley’s life expectancy. The treatment has been very effective in the US and has given children like Marley another shot at life. They've been desperately trying to raise £1.6 million to Marley to America for the life-saving treatment - the world's most expensive drug!! Since the fundraising began, a deal has been struck with the drug manufacturers to provide Zolgensma on the NHS but Rosie and Wes have faced an anxious wait to find out if Marley will be eligible.

AMAZING NEWS!! Marley was eligible and he's finally received the Zolgensma treatment - the most expensive drug in the world!! He's got a long battle ahead of him but he's a real fighter and Rosie and Wes are really looking forward to the next part of his journey! All money raised will go towards Marley's equipment, physiotherapy and day-to-day care costs to help him have the best life possible!