18%
£9,290raised of £50,000 target by 59 supporters

Weʼre raising £50,000 to Marley's Benefit

Location
Portimão, Portugal

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Story

UPDATE

Sadly Marley is now being cared for at home as his medical care is taking priority at the moment. He is currently off school and very heavily medicated.

Whilst seeing the private surgeon for Marley’s eye problem we were alerted to the fact Marley has severe cerebral pressure. Things are all starting to make sense with recent collapses, swollen liver and alerted us to very urgent and serious problems which needed to be treated.

We are now awaiting him to be ready for cerebral shunt surgery as soon as possible. This was suggested to us around a year and a half ago. Subsequently they said it wasn’t top priority as there was flow of the cerebral fluid. This is not the case now and obviously a huge worry.

Since seeing various specialists and consultants Marley now has to undergo various treatments, procedures and testing for him to be ready for surgery. Abnormalities which were detected during the last few months need to be treated before surgery and what we are currently undergoing.

I am hoping to start to get some insight with the genetics department if there is any link to a gene mutation which could help us in the future to indicate what problems might occur. It’s like fighting a constant battle with new areas constantly appearing. We don’t know how much this is all going to come to and I think it will develop over time so I am going to alter our target as we go.

We have been utilizing the state as much as we can, however some tests and procedures we just can’t wait for the state to approve. We need to see specialists across the country or potentially abroad as soon as possible.

This has to take place before any future medical move such as his eye operation. As we wait through the state we realise time is a massive factor. In order for Marley to get the help he needs as quickly as possible we want to raise the support for specialists, tests, surgery and subsequent issues. This has now become our priority.

...

Marley is a 6 year old little boy from the Algarve. He loves football, Mario super brothers and the colour green. His dream in life is to probably become a minion and is the happiest boy in the world.

Marley was born with various medical problems including muscular and bone conditions. He has a global delay which affects many things in his body such as his speech, hearing, understanding etc. Despite this he is a super hero!

Marley takes a lot of our time and attention but financially with therapies, private schooling and medication costs we simply don't have the extra cash supply him with all the equipment and medical care he needs which specialists have recommended.

Through our amazing fundraising and everyone’s amazing work we have purchased a specialized children's chair called an Active Fit which is small and easy for him to drive himself. The difference this chair has made to Marley socially and developmentally has been a game changer for him.

We have also been able to purchase Marley’s electric chair. He loves it and there is absolutely no stopping him! Thank you to each and every person who’s shared and been such an amazing supporter.

We can now focus our fundraising efforts for next year - with two fundraisers also being organized - for the equipment Marley needs at home. I have a list which I’ll also share on our page in case someone might have some helpful advice or a contact.

We have recently discovered his muscular problems have affected his eyelids and will be requiring an operation to pin these back. Through the state system this will take a long time and currently affecting his corneas. Specialists have recommended we go privately so we also must try and save enough to be able to afford this important operation. This will cost around 5000 euros. He will also be having an operation on his throat next year however it looks very unlikely these operations can be done at the same time. *This will be following shunt surgery*

And any more money we raise in various fundraising initiatives will be going to concreting the front of our house to make it more wheelchair friendly, bathroom equipment so he can go to the toilet and have a bath safely etc. Every penny helps and most importantly thank you for everyone who supports us from near and afar.

List of equipment on our wish list – I decided to share it on here as sometimes one of our fantastic supporters may have a contact or some advice in regards to anything.

- Travel hoist - €900

- Specialised mattress and sleepform support - €500

- Toilet aids and raised seat - €600

- Bath hoist and longer term wet room - Depending on funds raised

- Mattress overlays - €100

- Respiratory sleep device alarm - €150

- Blood pressure machine - €50

- Rest bite chair - €500

- Grab bars - €50.00 per bar with installation

- Bath seat and bath lift - lift upon quotation and specialized seat 379.00

- Specialised car seat - €250

- Ramp for the car and various at home - upon quotation

- Bed rail and support - €300

- Foam pillow and slide sheets - €200

- Pressure care - various

- Any other equipment which we become aware of to help with comfort but most importantly independence

Thank you!

...

We have some more fundraising events coming up and I'm feeling so grateful for everyone's love and support.

The kindness everyone has shown us is so kind and I just wanted to share my thanks with you. He is such a wonderful little boy and seeing him smile makes me so happy and you all were a massive part in that.

So much love and thank you

Kate and Marley xxx

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Updates

9

  • Kate Inacio18 days ago
    Kate Inacio

    Kate Inacio

    18 days ago

    Update from the Page owner

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  • Kate Inacio2 months ago
    Kate Inacio

    Kate Inacio

    2 months ago

    We posted our update in our bio, it’s too complex for the update word count. Looking forward to hopefully spending a few calm days enjoying Christmas. Marley goes back to hospital on the 28th. We really want to thank everyone for their amazing support this year and wish everyone a very merry Christmas. Please share our story as you never know who may know of who that might have some useful insight into our next chapter. I’m determined to make 2018 a positive year and am even more head strong I will find the specialists I need! Love to all

    Update from the Page owner

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  • Kate Inacio3 months ago
    Kate Inacio

    Kate Inacio

    3 months ago

    Please come and support the Christmas fair being held by Aljezur International School this Saturday 9th of December from 10am until 18.00 There will be many stalls selling local handicrafts and delicious seasonal food, live music from Stuart, Brendan and Josephine, a drumming circle in the afternoon and much more. All proceeds will go to our March for Marley appeal!

    Update from the Page owner

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5 months ago

Kate Inacio started crowdfunding

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Supporters

59

  • Gerard ter Haar

    Gerard ter Haar

    Feb 23, 2018

    All the best villa owners Ladeira da Nora Alvor

    £265.00

  • Rebecca May Walker

    Rebecca May Walker

    Feb 23, 2018

    I know this isn't much but I hope it helps x

    £20.00

  • Jessica Ann Walker

    Jessica Ann Walker

    Feb 23, 2018

    £10.00

  • Anonymous

    Anonymous

    Feb 20, 2018

    Good luck

    £10.00

  • Yvonne bakers

    Yvonne bakers

    Feb 20, 2018

    "Marie"

    £10.00

  • Andie Jennings

    Andie Jennings

    Feb 20, 2018

    Good luck Marie. Sending much love, hugs and positivity to all the family. He sounds a lovely lad 💞

    £20.00

  • Alasdair Clarke

    Alasdair Clarke

    Feb 11, 2018

    All the best with your fundraising.

    £50.00

About the fundraiser
Kate Inacio

Kate Inacio

Portimão, Portugal

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