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£1,720raised of £15,000 target by 55 supporters

Weʼre raising £15,000 to Help with adaptions and equipment for Ellie

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Story

Ellie is a 7 1/2 year old little girl from Kirkby Malzeard near Ripon who was diagnosed in December 2011 with Spinal Muscular (SMA) type 2.

SMA is a genetic neuromuscular disease, which means it is inherited and effects nerves responsible for muscle function. Children with SMA face the prospect of progressive muscle wasting, loss of mobility and motor function.

Progressive wasting(atrophy) of muscles can lead to the following:

Atrophy in trunk muscles can lead to skeletal deformities (e.g. scoliosis) Atrophy in breathing muscles can lead to potentially fatal respiratory problems Atrophy in swallowing muscles can lead to difficulties in eating and drinking

She will need care her whole life so our aim is to help her be as independent as she can.

Having recently finished adaptations on our house our next focus will be

To get our van adapted so Ellie can drive into it

A portable hoist to help with lifting and lowering around the house and when we are out and about.

As she gets older we will be looking for automated entry and exit systems for the house

Her current power chair will need replacing in the next couple of years as she grows

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Updates

8

  • Martin Renton3 months ago
    Martin Renton

    Martin Renton

    3 months ago

    A huge thank you to everyone how has donated and supported us. Below is a sort video of our epic ride and the stats as recorded on my phone. Thank you https://gopro.com/v/VWQeRbLgP7Kl

    Update from the Page owner

    Share this update to help us raise more

  • Martin Renton3 months ago
    Martin Renton

    Martin Renton

    3 months ago

    Thank you all for the great support. All the training done, the big ride is tomorrow so if you can share and get the word out there that would be great thanks

    Share this update to help us raise more

  • Martin Renton4 months ago
    Martin Renton

    Martin Renton

    4 months ago

    Another ton in

    Update from the Page owner

    Share this update to help us raise more

6 months ago

Martin Renton started crowdfunding

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Page last updated on: 8/26/2018 5:10 PM

Supporters

55

  • John Dalton

    John Dalton

    Aug 26, 2018

    Been meaning to get round to this since your epic ride! Well done! Love to Ellie and all of you, as always, from Constanza, Simon and me.

    £100.00

  • George Mills

    George Mills

    Jul 14, 2018

    Well done on the ride!

    £30.00

  • David Hartley

    David Hartley

    Jun 26, 2018

    Apologies for late donation but I wish you all well!!

    £20.00

  • Janette Scarth

    Janette Scarth

    Jun 14, 2018

    Well done to Patrick & the team - a tough challenge but for such a deserving cause.

    £20.00

  • Jill Armstrong

    Jill Armstrong

    Jun 13, 2018

    Well done everyone on the 200 mile ride

    £20.00

  • Paul Rhodes

    Paul Rhodes

    Jun 13, 2018

    Phenomenal achievement and a great cause!

    £30.00

  • Katie Poulter

    Katie Poulter

    Jun 12, 2018

    £10.00

Martin Renton

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About the fundraiser
Martin Renton

Martin Renton

Ripon, UK

We are Ellie’s parents and our aim is to make Ellie’s life the best it can be to teach her that her disability is not a limitation and she can achieve her dreams. To that end we are raising funds to carry on doing all the things we love as an active family.

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