Through running the 2018 London Marathon, I hope to raise funds directly for Charlee, which her family will use towards her continued and ongoing treatment and care.

Charlee is the beautiful daughter of my friends Steve & Natalie. Charlee was born with Möbius syndrome, an exceptionally rare medical condition for which there is little progressive treatment for in the UK.

She is unable to do many simple things we would take for granted, such as eating orally, swallowing or smiling. She also has hypotonia (floppy muscles) which affects her movement and motor skills, a clef pallet and one kidney.

Steve and Natalie undertook a number of fundraising activities last year, including a sky dive and sponsored walk. These raised a significant amount of money, meaning that in May this year they shall be taking her to America for pioneering therapy & treatment (www.it4k.com). Of course this will only be the start of her journey, and i hope to raise some funds which will be of support to Charlee after her first treatment.

Thank for for taking the time to visit my page, any support you are able to provide to help me support this cause would be fantastic.