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Matthew Joyner raised £3,690 from 129 supporters.

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Closed 20/11/2017

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£3,690raised of £1,000 target by 129 supporters

    Weʼve raised £3,690 to support Orlaith and the fantastic charity NICE. The challenge #OrlOrNothing = 4 Half Marathons, a Tough Mudder and a Full Marathon.

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    Funded on Monday, 20th November 2017

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    Story

    I have set myself this challenge to raise much needed funds for this fantastic charity and a wonderful little girl Orlaith.
    The money raised will be split 50/50 between the charity NICE and any equipment, adaptations or all round quality of life improvements for Orlaith and her family.
    Orlaiths Mom Caroline has written a few words to explain her experience of Orlaiths diagnosis and the support she has received from NICE.
    “Orlaiths development checks confirmed that she was delayed in achieving her gross motor skills and a referral was made to Birmingham children's hospital. The consultant explained that she had severe hypotonia (low muscle tone). Hypotonia itself is not a diagnosis and is often said to be a symptom of an underlying condition. We began some tests to identify the cause of her hypotonia including MRI, EEG, bloods, lumbar puncture and muscle and skin biopsy but to date none of these have identified a cause.
    Her low muscle tone has affected her achievement of gross and fine motor milestones it has also delayed her speech and language skills and the weaning process due to a weakness in her swallow.
    Orlaith has weekly sessions of conductive education, with this support she is beginning to make progress and build muscle strength. The next goal we are working on is being able to sit unassisted”.
    Conductive Education is based on a concept that everyone has the capability to learn and develop irrespective of starting point. Conductors are highly trained to observe this potential in a person; to nurture their development and devise structured programmes.
    NICE need to raise £600k to enable them to provide much needed services. Through donating you can give someone like Orlaith the chance to start the process of overcoming the challenges they face every day.
    So here is the challenge #OrlOrNothing
    Stratford Upon Avon Half Marathon
    Gloucester Half Marathon
    Full Tough Mudder South West
    Bristol Half Marathon
    Birmingham Half Marathon
    Venice Full Marathon

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    Matthew Joyner

    Updates appear here

      10 months ago

      Matthew Joyner started crowdfunding

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      Supporters

      129

      • Aled Hughes

        Aled Hughes

        Nov 19, 2017

        £10.00

      • Jonathan Workman

        Jonathan Workman

        Nov 2, 2017

        Brilliant Matt! Fantastic achievement and so good to help support Orlaith and her family in his way.

        £20.00

      • Joe Hamilton-Davies

        Joe Hamilton-Davies

        Oct 31, 2017

        Well done mate, massive achievement!!

        £20.00

      • Andy Mac

        Andy Mac

        Oct 30, 2017

        Well Done.

        £50.00

      • Andy Hayden

        Andy Hayden

        Oct 30, 2017

        Well done.

        £20.00

      • Fiona Smith

        Fiona Smith

        Oct 28, 2017

        £10.00

      • Jennifer Joyner

        Jennifer Joyner

        Oct 27, 2017

      Great people make things happen

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      Create you own page and donʼt let that cause go unfunded!

      About Crowdfunding
      About the fundraiser
      Matthew Joyner

      Matthew Joyner

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