Weʼve raised £0 to matthew and joseph's fund
- Northampton, United Kingdom
- Closed on Sunday, 9th December 2018
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I am the boy's cousin and we as a family have set up this fund to try and improve the boys quality of life for specialist equipment - we are hoping to raise money for them to have desks in their bedrooms that can be lowered or raised and any adaptions that we can make.
Both boys have Duchenne Muscular Dystrophy which is a muscle wasting life limiting condition. Matthew (aged 15) is already non-mobile and permanently uses a wheelchair. He has also been diagnosed as being on the autism spectrum. Joseph aged 13, is still mobile but uses a wheelchair for quite a lot of the time now and will most likely lose the ability to walk within a year or so.
The boys currently live at home in Witham, with their Mum, Dad and brother Oliver. They live in their own property – a bungalow, which has been adapted using a Disabled Facilities Grant. Further work is now being proposed to allow Joseph to have his own bedroom, as currently he and Matthew share a room.
Depending on how much is raised we may also make donations to Muscular Dystrophy UK and/or the Duchenne Family Support Group
Any money you are able to give (no matter how small) to this cause will be greatly appreciated and will make a huge difference to Matthew and Joseph’s quality of life.
- 1 year ago
Amie Kendall1 year ago
Matthew's heart function has deteriorated so we now have to up his medication and go back in 3 months time. We had some bad news about his spine a couple of weeks ago as he now has a 75 degree curve to his spine which is severe and means his heart and lungs etc are being pushed over. He really needs the spinal surgery but may not be able to due to his heart function. Matthew is at an age where lots of things start worsening he also has a cough assisst machine which he uses twice daily at the moment.
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