6%
£3,307raised of £50,000 target by 60 supporters

Weʼre raising £50,000 to Fund an SDR (Selective Dorsal Rhizotomy) operation for Max Bean who suffers from Cerebral Palsy.

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Story

Gemma (Mum) and I (Dad) took Max for an appointment at Great Ormond Street Hospital a couple of months back. As some of you may know, Max has Cerebal Palsy and the purpose of the appointment was for them to support in giving us our options in how best to progress Max and his future. We had previously been made aware of the SDR (Selective Dorsal Rhizotomy) procedure but not know whether it was suitable for Max or whether he was suitable for it.

The good news out of the appointment was that GOSH believed Max was a perfect candidate for the operation and state the purpose of the procedure is to improve his quality of life. To give you some detail behind the operation see below;

SDR involves sectioning (cutting) of some of the sensory nerve fibers that come from the muscles and enter the spinal cord. At the time of the operation, the neurosurgeon divides each of the dorsal roots into 3-5 rootlets and stimulates each rootlet electrically. By examining electromyographic (EMG) responses from muscles in the lower extremities, the surgical team identifies the rootlets that cause spasticity. The abnormal rootlets are selectively cut, leaving the normal rootlets intact. This reduces messages from the muscle, resulting in a better balance of activities of nerve cells in the spinal cord, and thus reduces spasticity.

The unfortunate news is that this procedure is still in NHS approval therefore is not currently funded through the NHS and wont be until the next 12-24 months. The amount we are looking to raise is £50,000. This will cover the full operation costs and associated costs as well as intensive physio for 3 weeks along side a few months of private physio.

Where we do not expect anything, whatever you can give to help reach this goal would be greatly appreciated. This would significantly increase Max's mobility if successful and will give him a better way of life.

For any more information please contact
Ryanbean3009@gmail.com

Thank you.

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Gemma Barker

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    7 months ago

    Gemma Barker started crowdfunding

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    Supporters

    60

    • Liane Long

      Liane Long

      Feb 2, 2018

      Well done for dry January Steph x

      £5.00

    • Paul Savill

      Paul Savill

      Feb 1, 2018

      £10.00

    • Tracy Couchman

      Tracy Couchman

      Jan 30, 2018

      Good luck with the fund-raising x

      £30.00

    • Wendy Wild

      Wendy Wild

      Jan 28, 2018

      Hope you reach your target xx

      £10.00

    • Tracey Mawson

      Tracey Mawson

      Jan 28, 2018

      Good luck and best wishes to you all xx

      £10.00

    • Debbie Galvin

      Debbie Galvin

      Jan 27, 2018

      £10.00

    • Elouise Gallimore

      Elouise Gallimore

      Jan 27, 2018

      Wishing Max lots of luck x

      £20.00

    About the fundraiser
    Gemma Barker

    Gemma Barker

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