Weʼve raised £0 to get Max to America for therapies because the UK alternative surgery is unthinkable!
- Cheshire, England, United Kingdom
- Closed on Saturday, 25th June 2016
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Max's scoliosis requires surgery before his curve impacts his internal organs and becomes life threatening. It means inserting metal rods along the length of his spine. It's nasty, invasive surgery leaving a scar the full length of his back. He will require repeated surgeries every 3 to 6 months to lengthen the rods through his growth spurt from age 8 until12 and beyond. Ultimately he'll likely require his spine fused solid and be left with life-long disability and pain management.
There's no cure or management in the UK - just observation until surgery is required. I know from my last few years of research that there are routes to a better outcome. Dedicated, multi-disciplinary scoliosis centres addressing physical, neurological and genetic influences. We've had one intensive therapy trip of 3 weeks that reduced his curve by around 50%. With that knowledge, irreversible surgery with life-long problems is simply not an option.
I took Max to America January16th for 3 weeks. Max had immediate results and continues to improve - meaning he doesn't need have the barbaric surgery we do here in the UK. You can follow his story to date on his Facebook page 'Maxipotential'. I invite you to follow. It's amazing, fascinating and lovely to see his progress. Ultimately, I hope it will help a lot more people as I transition Max's fund into a charity to spearhead innovation in the UK.
£50k secures travel, accommodation and his intensive therapy clinics out there, £7,500 for replacement 3D braces, approx £4,500 for an adapted wheelchair, and approx £5,500 for car adaptations. He will then require daily visits to attend his exercises, costing around £30,000. If he requires less-invasive keyhole surgery available in America we will raise more.
- 2 years ago
Sarah Bailey2 years ago
I started fund raising on December 14th 2015, raising £35,000 in 30 days. It is down to this initial kindness and generosity of Max’s supporters that he was able to go to America to start his life changing treatment. He had outstanding results which must continue. So here we go..
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About the fundraiser
Cheshire, England, United Kingdom
Hi I'm Saz, Max's Mum. I’ve spent the last 8 years or so immersed in helping Max realise his full potential. That’s thrown me headlong into researching, exploring options, and battling expert opinion. I’ve proven surgery wrong before and this time it’s so much more serious......
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