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Heather

Heather is crowdfunding

18%
£417
raised of £2,260 target by 10 supporters

Weʼre raising £2,260 to help fund UP TO a years legal medical cannabis for a chronically ill & disabled lady with severe constant chronic pain - Anything helps!

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

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Story

Updated 18th June

I am trying to raise money to be able to get up to a years legal medical cannabis which is a massive help for my severe chronic pain and is the only painkiller to help dramatically with my chronic pain, sciatica and migraines. It also helps with my fentanyl withdrawal between patches! It is also the last option for me as there is nothing else on the NHS for me and the strongest painkiller available, Fentanyl, doesn't work as well anymore plus the withdrawals and fatigue are getting worse.

I say up to as looking for as many months as I can get as I could never afford this myself on just over £300 a month disability income as I can't work. The more I get, the many more months I could get and more pain relief.

Full breakdown at the bottom, information about me, my health and income below.

You can donate from anywhere in the world!

I have more info about my health and my struggles on my chronic illness blog going back years if you want proof of my health issues check the about me especially, as well as numerous posts covering my health and money issues. https://www.chronicheather.eu.org/ I will also be blogging about the painkiller once I get it!

I have had multiple articles about me and my health and also struggles:

I also had a news post about me! This is from a local Yorkshire newspaper.

Here is a magazine article about me.

Also, here is a post about me on the plea site.

This is for the initial interview, a years worth of check-ups and 1 product a month (1g a day) for a year. I have been told by the clinic that I should have 2 products a month (oil and flower) but that is double the price a month so would be £4,060 for a years worth which is a lot to ask for, so this current goal is for just 1 product a month which wouldn't work as well, but still has pain relief and is cheaper. I would rather have the 2 items of course as there would be a lot more pain relief, but I don't think I will hit this target so I can't really ask to raise enough for 2 items a day as it is almost double the year total. I am asking for the least I can from people as I know this is a lot already.

The prices I quote are already 50% less than without this project (clinical trial type of programme) so imagine how much it would be if the prices weren't reduced! This is why it is a great price.

Honestly I would love to be crowdfunding a power chair so I can actually get out of the house as I only go out for medical appointments I cannot do on the phone. A power chair would give me much needed freedom, but if I am in unbearable pain I can’t go out anyway! I may try to crowdfund a power chair in the future after this crowdfund, as it would be a dream to get out whenever I like, but the pain is horrific and needs help first.

I have severe chronic pain every second of every day in the majority of my body. It is nothing you can imagine. The worst pain ever all over. It affects everything I do and I barely leave the house as it is so bad. Every second of my life is pain. Horrible pain. The pain is getting back to being a 10 all the time. As you will read below, this is unbearable without something to help the pain. There is nothing else on the NHS. I am on the strongest painkiller available and it doesn't reduce the pain much plus lots of withdrawals! Medical cannabis is a medically legal painkiller I need but only from private doctors. Not the NHS.

I am trying to raise enough money for up to a years treatment and supply of legal medical cannabis. If I could get more than that, then that would be amazing! Anything would help but if I could get a years worth, I wouldn't have to worry for a year about painkillers.

Cannabis is the only painkiller that works well, no side effects, harmless and safe. My Fentanyl works less and less and the withdrawals get worse and worse. There is nothing else available on the NHS and I desperately need this but it costs money. Money I don't have living on just over £300 a month.

If you don't know, it was made medically legal in November 2018. It is a safe and wonderful painkiller.

I know a lot won't help as they get put off/hate/dislike/aren't informed about "cannabis" even though it is a medically legal and SAFE painkiller. Safe, non addictive, hasn't killed anyone and WORKS. Here is a recent study from Harvard showing cannabis helps chronic pain. There are many other posts too, this is just one for those that don't know that it works well for chronic pain.

It is not CBD which you can buy on the internet legally, it is THC which is the bit that works the best for my severe pain and for millions of others all over the world. This is only from private doctors in the UK and cannot be got on the NHS for pain.

Cannabis is not like opioids where your body gains dependence and you have to wean off them. Safe and it works. I know as I have tried it for many years! Please if you would like to help but get put off by the term cannabis, please feel free to read my blog for posts about it or search the internet for "pain relief from cannabis" and you will see so much information about it. Millions use it for chronic pain and that is why it is medically legal here and in many other countries and US states.

This is something I desperately need as I can't go back to being bedbound 24/7 and it is going that way again. If you can help, please do!

This is the cheapest possible price! I have waited this long to find a "cheap" private doctor. This is 50% cheaper than normal! This is due to it being sort of like a clinical trial that you pay for as they are gathering information.

I have horrific 10 out of 10 severe pain every second of every day, from my neck, whole back, arms, buttocks, thighs and hands. The pain is so debilitating I am disabled due to it. I can't stand more than a few mins and can't walk far. The pain is horrific. Was unbearable without the fentanyl, but that isn't working much now (was about an 8 or 9) and is getting back to being a 10 all the time.

I rarely leave the house other than for hospital appointments or doctors appointments I can't do over the phone as I can't walk far or stand long due to horrific pain. My pain is getting worse as time going on and the Fentanyl is getting less and less effective and the withdrawals are getting worse and worse.

I can't work so I have no money, and I only get PIP which is just over £300 a month, so I barely have enough money to live on, let alone buy medical cannabis.

Cannabis would give me some form of a life! It is medically legal and a wonderful painkiller.

I would take holidays when I could work to legal places to get pain relief. I can't work and that isn't viable to do every few months now anyway anyway as the pain is too high to walk about now and I have literally no money.

I need the painkiller that works for me plus is the last option anyway as I have tried everything on the NHS anyway! This isn't on the NHS for pain so I have no choice but to crowdfund as all my family are dead, I can't work and live on pennies a day!

The prices are half the price of elsewhere as it is a project which is like a clinical trial but you pay for it. If I went to non project style, then the prices would be 50% more and also more fees such as repeat prescription fees, initial consultation fees higher etc. This is 50% less than a non project and is the cheapest yet.

The idea is for them to get info for the NHS in the hopes that the NHS will adopt it over the next years. That is why it is like a clinical trial. The prices will go back up after the trial is over, but hopefully by that time it will be the same price OR it will be on the NHS.

It isn't like the USA where in legal states you can get a medical cannabis card and buy as much as you need, you pay for appointments to see a doctor and he prescribes a specific amount for a month. You then get a repeat prescription for that amount. You can't get whatever you like each month. Also if you need to change the prescription, you need an appointment. Also need an appointment every month for 6 months, then every 3 months. Appointments all cost! They aren't free! You get same amount every month, you can't even pay for a gram, it is 10g, 20g or 30g and 30g is 1g a day which is £150. I really need 2g a day but that is £300 a month which is way high. I am crowdfunding for the smallest amount that will help.

My lack of income:

I am unable to work and I get just over £300 a month PIP and that is it! I have to pay for my medical prescriptions, bills, food etc from that tiny amount.

I can't get ESA as I hadn't paid any National Insurance as I was only working part time before I couldn't work any longer as I tried to work as long as I could so I did part time. This means I hadn't paid any national insurance and why I can't get ESA. It is ridiculous but they won't do anything about it.

My income isn't even enough for rent for anywhere and is equal to 4 days full time work minimum wage! That is how little I get a month! I struggle severely on this money and more so with all my health issues on top.

My conditions:

I have severe chronic pain, chronic fatigue, sciatica, migraines and more.

I can't work and barely ever leave the house as I can't walk far or stand long.

I have pain so severe that at one point I was bedbound 24/7 with 10 out of 10 unbearable pain so bad I wanted to die. I would scream and cry ay and night, barely able to sleep from the pain.

I tried everything available on the NHS over a long period and ended up with the last resort and the only thing to do anything which is Fentanyl which is stronger than heroin and still doesn't reduce my pain by a lot.

It reduces my pain from 10 to about an 8 or 9. Still extremely high but I can get out of bed and sit downstairs so am not bedbound 24/7 like I was.

This is the strongest opioid available and I have issues with it. I have been on it 2 years now.

I have withdrawals between fentanyl patches which is sweating and chills and worsened pain. I change the patches at 48 hours instead of 72 hours as the withdrawal was even worse. The withdrawals get worse as time goes on as my body gets used to it. The pain also starts to get worse as it gets less effective.

There is nothing else available on the NHS for my pain. This is the end game item which they prescribe for palliative care as it is so strong.

I have to take medications for the withdrawal, amitriptyline for the sciatica and migraines and I also have morphine for breakthrough pain as well which doesn't really do anything but I can't go back to a higher fentanyl dose as I couldn't keep awake.

I have to speak to my doctor every 3 weeks as I am on an interval that is not recommended but if I wasn't on the Fentanyl, I would be dead as the pain is unbearable without anything.

Reducing it to an 8 or 9 isn't much and I am still in extreme pain, just not bedbound 24/7 with even worse pain. It is getting back to being a 10 all the time. I can't cope with it like that. I really can't. When it gets to be a 10 all the time, I am bedbound all the time and want to die as the pain is unbearable. Nothing you can imagine.

Cannabis helps my pain and helps the stiffness and sciatica as well.

Chronic illness is invisible other than my walking stick and rollator so hard to prove to you other than the many years of blog posts and Tweets. They are all very in depth and honest going back years. The about me is the best overview post if you don't want to read lots, but there are other posts about my finances as well as all my blog posts are very in-depth!

I can't upload any other proof other than my blog as I haven't got a bill to show you as can't afford it yet. If I got enough for a month or two I could then upload some proof. Until then you have my blog for years of posts and my twitter for years of tweets.

Cannabis is amazing. It gives me less pain, less stiffness and a wider range of movement. I won't be running outside if I got it, but I wouldn't have such a miserable painful life like I do now. It would help me so much! I certainly wouldn’t be bedbound with it like I am at a 10.

I can't get cannabis on the NHS as they won't prescribe it for chronic pain and barely ever prescribe it anyway, giving only a handful of prescriptions since 2018 when it was made medically legal.

I can get cannabis from a private doctor but it isn't cheap even with the cheapest plan which is project where they have reduced the costs.

Medical cannabis is safe, no withdrawal, has never killed anyone, non addictive and works!

Costs of medical cannabis at the cheapest price possible:

(these prices are 50% cheaper here with this project/clinical trial than if I went to a normal private doctor without the project!)

Free Eligilbity interview ✔

£100 initial interview

£45 follow up appointments (Every month for 6 months then every 3 months. Any prescription changes also need an appointment)

Free repeat prescriptions (This isn't always the case at many places so this is great!)

£150 a month for the medical cannabis 30g (Minimum cost. Might need more) this is at 1g a day, technically I need 2g but that would be £300 a day which is too much so aiming for the cheapest price.

£2,260 total for 1 year (at the very least for 1g a day rather than 2g)

Recent update: Speaking to the clinic at a free eligibility interview the doctors have already suggested a mix of 2 products which is £300 a month which is just too much to ask for so this my quote above is for a minimal 1g a day which would still help but nowhere near as much as if I had the 2 products! Asking for the 2 products which was recommended to me would be £4,060 a year so I am aiming for the 1g a day which is £2,260 a year. 2 items is ideal and would work much better but that is a lot to ask for.

My clinic doesn't put the prices online but here are 2 clinics that post their prices publicly. Not all do and you don't get written quotations as this is the UK and it is like a clinical trial. Prices vary slightly for consultation fees and repeat fees as a lot charge for repeat prescriptions and others don't. Clinic 1 prices , clinic 2 (clinic 2 isn't project twenty21, but you can see their fees are similar) and clinic 3 prices. All showing their prices as well as a pic at the bottom of this page from the main project twenty21 prices which is the painkiller prices which doesn't vary as it is part of this clinical trial, only the consultation, doctor and prescription fees vary between clinics.

This is a project so like a clinical trial that you pay for. The prices are 50% less than a regular private prescription for medical cannabis. Also normal prices have higher consultation fees, repeat prescription fees, higher cost of the medication. This is a trial so they take your feedback every month. That is why they want people who can do this for a longer term than getting it one month and missing it the next. The 50% cheaper price is due to that. Project Twenty21 is the name. The prices of the medication is even on the drug science site.

I am trying to raise enough money for a years treatment. If I could get more than that, then that would be amazing! This is the cheapest possible price!

As you can see I can't afford it myself on just over £300 a month income and if you could help it would really help me! It would give me some form of a life.

I really hope you can help.

I have a Ko-Fi/PayPal option too. If I raise anything via that I will adjust the total here and vice versa.

If I don't fulfil the target, I will use whatever I get for the medical cannabis or if I get more than the goal, I will use it for over a year or for 2 items a month which is what I am supposed to be on as that would help much more, but costs double the price. The longer I can get the better as I could never ever afford this myself on £300 a month. With your help I can hit the goal and get at least one years worth of a safe painkiller that works that I simply cannot get on the NHS for pain and there is nothing else for me on the NHS.

You would be helping me so much if you can help. A years worth would be a dream, more would be even better but anything would be amazing.

If you can help, please do. It would really help me a lot.

You do not need to be in the UK to donate! You can donate from anywhere in thr world, just donate in pounds.

If you have any questions I am happy to answer them!!

Here are some photos, one showing it is medically legal, second showing it works for chronic pain, third the pricing of the flower. At 1g a day, £150 a month for 30g (I need more like 2g but that is £300 so that is much too much to ask for as it is double the price I am asking for a month!), then shows pricing as each clinic is different for fees, but not for the product, the last shows my current medication.

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Updates

5

  • Heather5 days ago
    Heather

    Heather

    5 days ago
    Update from the Page owner

    Thank you to the 10 that donated so far

    Share this update to help us raise more

  • Heather8 days ago
    Heather

    Heather

    8 days ago

    13% of the way there!! I don't expect to hit the goal although it would be absolutely amazing if I did as pain relief for a whole year would be astounding. Thank you all so much for the help so far!! If anyone needs any proof, check the links in the post as there is a newspaper article on me, a news post about me, link to my 3 year old chronic illness blog where I share my health and struggles and also my Twitter which has lots of posts almost every day for 2 years.

    Share this update to help us raise more

  • Heather15 days ago
    Heather

    Heather

    15 days ago
    Update from the Page owner

    Thank you to the 5 so far!!

    Share this update to help us raise more

1 month ago

Heather started crowdfunding

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Page last updated on: 6/19/2021 10.43

Supporters

10

  • Anonymous

    Anonymous

    Jun 18, 2021

    £30.00

  • Anonymous

    Anonymous

    Jun 18, 2021

    £40.00

  • Hannah Deacon

    Hannah Deacon

    Jun 18, 2021

    £40.00

  • Anon

    Anon

    Jun 16, 2021

  • Si

    Si

    Jun 10, 2021

    Situations like this are rage inducing. Everyone causing this are cnuts.

    £100.00

  • Anonymous

    Anonymous

    Jun 9, 2021

    £12.00

  • Jenni

    Jenni

    Jun 9, 2021

    I wish I could give more.

    £5.00

Heather

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About the fundraiser
Heather

Heather

England

Chronically ill & disabled lady with severe chronic pain, chronic fatigue, sciatica, migraines & more. Living on just over £300 a month as I can’t work so can’t afford it myself. My chronic pain is severe and I rarely leave the house due to it. It would help my life

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