Here is a bit about the life threatening conditions Hannah, who’s only 28 lives with every day! She told me she has only 4 hours in a day to herself in between home visits for her medications (over 100 tablets and 16 IV injections)! If you speak to Hannah and her family you’ll never have met a more positive, determined, upbeat family! And because of this I’m trying to raise money to help them!

The money raised will go towards the medical bills for her multiple appointments and specialist help in order to rid her of a machine that Hannah is hooked up to for 24 hours a day! And hopefully by doing this Hannah can get her life back!

Unfortunately the Welsh Health department and our Local health board (ABM) are still refusing to fund the extra treatments Hannah will need here in the U.K. This is a breakdown of her conditions in her own words.

The chronic systemic condition that needs treating is called mast cell activation disorder (MCAD). UK specialists, consultants and Doctors have all said I desperately need this treatment as I am so antibiotic resistant now I'm in constant danger of picking up an infection which causes my body to start shutting down, quickly becoming life threatening which is terrifying for me and my family.

Below is a break down and basic description of the chronic conditions I live with:

1. Ehlers Danlos Syndrome EDS, which is a very complex connective tissue disorder which effects sufferers differently. With me it effects my mobility, energy and a lot more, many people with this condition are in pain daily.

2. POTS, postural orthostatic tachychardic syndrome, which for me is chronic and systemic. My bodies autonomic system doesn't work properly, so everything my body is meant to do automatically such as control heart rate, blood pressure, body temperature, digestion etc, doesn't work. This wreaks havoc on my body and my ability to live day to day without medical intervention.

3. Mast cell activation disorder also known as MCAD is a systemic disease where my mast cells are aggressive and hypersensitive. Also the walls of my white blood cells break down very easily causing my body to attack itself and means my immune system doesn't work at all. For me it also causes very high blood histamine levels, which means I'm constantly at risk of life threatening allergic reactions to everything and anything. Also my mast cells attack my immune system which results in me having Multiple life threatening problems as my body can't fight off even the smallest virus or infection, so I become critically ill very quickly. This condition has attacked my immune system so badly I have to wear a mask in public. I am now resistant to every antibiotic, except two. This is why the treatment in the USA is my last chance.

I have to take over 100 oral meds a day, and 16 IV injections via my Hickman line 4 times a day. My Hickman line is a visible line that goes straight into the centre of my chest, that then goes straight into my heart.

Due to the complexity of how these conditions effect me which is very rare theres NO funding on the NHS in ANY UK hospital. Because of this I've had to set up this page to fundraise for life saving treatment, as I already have to pay for some of my daily medications and 3 monthly appointments to see private specialist consultants in London.