Weʼve raised £810 to Bristol Half Marathon: raising money for Freddy Vallender's treatment
- Bristol, United Kingdom
- Health and medical
- Time left
- Funded on Sunday, 24th September 2017
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Freddy is the cheeky 4 year old son of a colleague of mine. However, he has an extremely rare and life threatening heart condition.
At 4 months, Freddy had a cardiac arrest. The Vallenders were told that there was a 6-8% chance he would survive. Astonishingly, Freddy did survive thanks to amazing paramedics and CPR by a neighbour.
Freddy was diagnosed with a cardiac tumour: a Fibroma in his left ventricle. The tumour is 5cm by 3.5cm. It makes up much of his heart wall and fills 2/3rds of his ventricle. Cardiac tumours occur in only 0.2 percent of the population. They are completely random and is not a generic condition. Most children present in the first year of life and unfortunately 33 % do not survive.
The tumour causes dangerous heart arrhythmias which make Freddy’s heart beat in excess of 200 beats per minute and can lead to sudden death by him going in to cardiac arrest. To date Freddy has had 3 heart surgeries and has a defibrillator implanted in his tummy, but he needs further treatment.
There is no cardiac centre in the UK that have any experience in carrying out this surgery.
Boston Children's Hospital in the US is the leading centre in the world. From 1990 to date they have successfully removed 7 fibromas in children whose life threatening rhythms have disappeared once the tumour has been removed.
Freddy now needs to go to Boston to have lifesaving treatment to remove the tumour.
The Vallender's have said that having a poorly child changes you as a person: 'You do not dare to look into the future and live in the moment. You face that fragility of life every day'. They now need your help to perform another miracle and get Freddy to America for his operation.
Please donate generously.
Updates appear here
Meggie Lewis started crowdfunding
Leave a message of support
Sep 18, 2017
Sep 17, 2017
Well done Meggie
Sep 16, 2017
Sep 15, 2017
Good luck! Hope Freddie gets the treatment he needs! xx
Sep 14, 2017
Good luck Meg! Xx
Sep 13, 2017
Wishing you the best of luck meg! You're gonna be amazing, sorry your knee will slow you down but it's so inspiring what you're doing and for such a great cause ❤️Love from cousin Sarah 🎉
Sep 12, 2017
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