So for everyday in May im going to be doing 10,000 step in aid of Isabella whom suffers a daily battle with PROS (PIK3CA related overgrowth spectrum Disease). We recently received information about isabellas hand which is effected by a rare disease (called Macrodactyly) which will soon need more life changing surgery.

This was really hard to take in and accept as a family, she will in due course now need another full ray amputation to remove the middle finger on her left hand resulting in her only haveing 2 fingers and her thumb on the left hand and another long recovery and more hospital appointments and trips to great ormond street childrens hospital in london.

We also recieved news that Isabellas Lymphatic Malformations are comming to the stage where they need treatment which we are currently undergoing scans & tests for to assess the situation and see what we can do to treat this rare problem.

So as i go through this journey in May will you help support a little girl who is strong, brave and willing to smile, laugh and pull her way though every battle she faces in life now and in the future.

Thank you for your time in reading this and please remember every penny counts.