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£245raised of £8,000 target by 9 supporters

Weʼre raising £8,000 to FOR MIA - TO HELP ADAPT A GARDEN AND HAVE A HYDROTHRAPY POOL FOR MEDICAL AND SAFETY REASONS TO IMPROVE HER HEALTH,WELLBEING & INDEPENDENCE

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Story

Ok .......Not sure what to write as this was the last resort to ask for help, as i know there are so many much more worthy causes out there in need of support. but after having 8 hours sleep, and for those of you who know me this is VERY very rare, i am more determined to get this done....

Mia is 11 and has congenital hemiplegia a form of cerebral palsy that effects her mobility and joints, she tends to dislocate very easily and has very sensitive skin. this comes with a large range of other ailments that is also part of her condition but I don't want to list everything she has been diagnosed with,( don't think this is fair on her but willing to confirm if needed) we have many daily battles with a lot of things, but pain and mobility is the main one. Mia constantly pushes herself to her limits and is starting to recognise what she should and shouldn't be doing, (Although this hasn't made a difference). on average due to Mias sleeping positions (has to be helped turned every other hour) we rarely get more than 3 hours full sleep. if she is left during the night she awakes in a great deal of pain, and her mobility is VERY limited, that also results in joints being inflamed and has a huge impact on her mobility and wellbeing rest of the day. before questions come in we have tried all sorts to try and solve this with help of consultant but have so far been unsuccessful, and I don't want to resort to her being fully medicated as this has other side effects and more damaging I am unwilling to explore. The impact of what Mia does throughout the day as well as the weather as a huge impact on her health and results in her needing her wheelchair at times. but again those of you who know Mia me telling her to slow down has no effect whatsoever.

Mia has fundraised successfully for Many years as well as working alongside the child commissioner, and within the Welsh assembly in order to make some changes within community , government and education for disabled children. she is first to put her hand up to help support others, and always puts in more that 110% to help others. she has raised loads of awareness for both charities she is an ambassador for that has resulted in a number of local children as well as others getting Dreams or support they so urgently needed. (Mia is against me asking for support for her but knows how much it benefits her)

My aim is to have a adapted garden that Mia can access with her friends and sister, so she can play independently, without having me having to watch her 24/7 incase of falls or dislocations. and have access to a hydrotherapy pool as and when she needs it to improve her tone strength and stability and reduce inflammation and pain. the surface around will be rubberised ( to prevent dislocations and slipping )and artificial grass. ( Mias skin reacts to normal grass) .This will not only improve Mias health but also her social and wellbeing.

we have started adapting the garden and cost is escalating slowly, as not only does it have to be accessible , but also has to be flat to support her balance, and reduce falls............. I have had a few comments that also put me off setting this page up that I am doing this for a nice garden, and to be honest that is a bonus BUT clearly you don't know me or my daughter that well. watching her struggle daily with pain , always having watch her emotionally breakdown when exhaustion and frustration gets to much. being told she can't do things due to her mobility and lack of sleep is mentally physically and emotionally exhausting. this also setting off my fibromyalgia (but thats another story lol)

I am willing to answer any questions or provide any medical reports confirming need of hydro pool for medical reasons , and Mias medical issues.

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karene thorne

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    16 days ago

    karene thorne started crowdfunding

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    Page last updated on: 8/6/2018 1:54 PM

    Supporters

    9

    • Anonymous

      Anonymous

      Aug 6, 2018

      £10.00

    • Kathryn Thompson

      Kathryn Thompson

      Aug 6, 2018

      Good luck Mia love Mali (& family)

      £20.00

    • Candice Davies

      Candice Davies

      Aug 6, 2018

      Good luck getting it completed for Mia.

      £5.00

    • Brenda Walsh

      Brenda Walsh

      Aug 5, 2018

      Good luck. This is something that will benefit the whole family and will hopefully make Mia's life that bit more bearable. Xxxx

      £50.00

    • Maureen Smyth

      Maureen Smyth

      Aug 5, 2018

      Can't think of a better 'good cause' to support! Much love to you all. xxxii

      £50.00

    • Louise Tooze

      Louise Tooze

      Aug 5, 2018

      Mia has selflessly raised thousands of pounds for other children in need. It’s time for Mia to have something she desperately needs. Good luck and lots of love xxx

      £20.00

    • Craig Simpson

      Craig Simpson

      Aug 5, 2018

      Good luck Karen - Mia and your family have been so selfless raising funds for others it's only fair you get the support you need.

      £50.00

    karene thorne

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    karene thorne

    karene thorne

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