Weʼve raised $0 to Help Miaoqi to get the life saving treatment she needs & let her live her life.
- Toronto, ON, Canada
- Closed on Friday, 5th January 2018
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This is Miaoqi Wu , the only daughter of Dahui Wu and JinJin Wang. On Sept. 23, 2017, our lives were forever changed. Miaoqi was diagnosed with a very rare brain tumor, called a Diffuse Intrinsic Pontine Giloma (DIPG). DIPG is almost uniformly fatal. To date, radiation therapy (RT) is the only form of treatment that offers a transient benefit in DIPG. Miaoqi underwent 30 rounds of radiation treatment over a 6-week period in October 2016. She was only 5 years old and she did this like a true and brave superhero. She never once needed anesthesia. She knew what she needed to be done, as scared and frightened as she was, and she did it with indescribable perseverance and grace. In December 2016, an MRI showed that her tumor had shrunk over 50%, it seemed like a small amount but in the DIPG world this was good news.
Unfortunately, an MRI showed that the tumor has come back in April 2017. Miaoqi was already on progress , loss of strength in left hand, unbalanced walking, minor speech issue and minor regular headaches. We tried to find a pioneering treatment to save Miaoqi but it is time limited. The tumor is progressing very fast and Miaoqi underwent a ventriculoperitoneal shunt because of hydrocephalus. Dr Eric Bouffet from The Hospital of Sick Children in Toronto advised us to try re-irradiation at this point. 80% of DIPG patients would improve their symptoms after receiving re-irradiation. We tried our best to find an oncologist who are willing to do re-irradiation in China, but we failed because of the doctors in China had no experiences in re-irradiation. So, We went to Toronto in August and now we are receiving radiotherapy here. Miaoqi improved a little after several sessions radiation and she can sit and draw some paintings by herself now.
Radiotherapy is a palliative treatment and it may control the tumor only 3 or even less months. So, we continued finding a new treatment which target on tumor. In the meantime, a world pioneering treatment in Mexico started circulating widely among DIPG families via social media. The treatment is Intra-arterial Chemotherapy Infusion Treatments and immunotherapy. It is designed for DIPG children and it showed positive signs on many DIPG kids. We really want to take Miaoqi to Monterey ( in Mexico) to give our lovely girl a fighting chance to kick DIPG monster.
This treatment does not come cheap. it is Circa $ 220,000.
1.Intraarterial $ 16000USD per treatment; 2.Immunotherapy $ 15000USD per treatment; 3.maintenance sessions if required after.
Budget for:10 sessions of Intraarterial and 4 sessions of Immunotherapy.
Treatment Cycle:- minimum 17 days and maximum 35 days between treatment, however early days, the doctors suggest 3 week cycles.
We owned an online shop in China and our business was growing steadily. Unfortunately, the business is standstill now because of no time management. We need to take care of Miaoqi day and night and spend all time with her. We have spend Circa $ 180,000 USD on Miaoqi ' s previous treatment in China and Canada. By this time, we have used up all our savings. Of course, everything we do for her is worthing. we love her so much and we will accompany her forever.
We need to raise this money really quickly to get Miaoqi onto this treatment , to try and save her life.
We would be immensely grateful for any contribution towards our fundraising target (however small); we continue to be amazed by the love, support and generosity people have shown us.
Thank you so much for taking the time to read.
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About the fundraiser
Toronto, ON, Canada
Miaoqi is my brother's daughter, she is 6years old as my daughter. They grew up together as twins. I love Miaoqi and I hope we could save her life