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Michael Ross raised £2,515 from 90 supporters

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Closed 06/12/2018

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£2,515raised of £500 target by 90 supporters

    Weʼve raised £2,515 to help support Max and his family make life with SMA Type 1 that little bit easier.

    Funded on Thursday, 6th December 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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    Story

    Max was diagnosed at 9 weeks old with a rare genetic condition called Spinal Muscular Atrophy (SMA) Type 1. SMA is a degenerative condition and causes progressive loss of movement and muscle weakness. Until very recently, babies born with type 1 would not be expected to live beyond 8-12 months with only a few ever reaching their 2nd birthday. SMA affects the voluntary muscle groups such as those required to move arms and legs but also those required to eat and breath. In Jan 2017 at 14 weeks old, Max was given the chance to try a drug called Spinraza, following the huge success of the drug in clinical trials which ended in Oct 2016. The drug is administered via a lumbar puncture every 4 months in theatre at Ninewells hospital and has changed the course of his fate so far. Max can now hold his head up, sit up unassisted, lift his arms and move his legs. He is a long way from being able to walk and support himself properly but has a special supportive chair at home to prevent the scoliosis in his back from getting worse. He has an adapted buggy to give him extra core support and also a standing frame to help strengthen and build up the muscles in his legs. Max also has a bipap machine which is like a ventilator that he wears every night to give him the chance to strengthen his lungs and take deeper breaths while he sleeps. This also allows the air to circulate round his lungs and helps to limit the chest infections that he is vulnerable to. We are very positive and hopeful that his long term treatment with Spinraza means a positive outlook for Max’s future. He recently got his first set of wheels in the form of a Wizzybug (small power chair) and through the efforts of a small group of friends Max now has his own small hot tub in the garden which he is using twice daily for hydrotherapy. Max has come a long way in the last 18 months and we are positive that his future looks far from the prognosis that was first given.

    Updates

    3

    • Michael Ross2 months ago
      Michael Ross

      Michael Ross

      2 months ago

      I can't quite believe the generosity of you all, the support has been overwhelming :-). We have managed to raise far more than we ever hoped and will be put to use straight away for the summer house to protect Max from the elements when he is doing his exercises. The Banchory Beast was a couple of weeks ago now and I am happy to report that we all made it round safe and well. We had an absolute blast doing it. I highly recommend signing up for next year. Thanks again from Max and his family, you have been amazing!!!

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    • Michael Ross3 months ago
      Michael Ross

      Michael Ross

      3 months ago

      Well what can I say other than a huge thanks to all of you for your kind donations, the response has been amazing. I had the pleasure of spending some time with Max and the family last weekend.......he is such a happy contented wee champion with driving skills that we would all be proud of :-). His development continues to amaze us all and he even managed to teach me some Makaton!!!! So the big day is tomorrow, still time to get fit!!!!. We have an additional member to the team since I last posted, welcome to team Max Mania Paul Robb.

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    • Michael Ross4 months ago
      Michael Ross

      Michael Ross

      4 months ago

      Thank you all so much for the donations that you have made, it is much appreciated and going to make a big difference. There is now only 4 weeks until Stuart, Euan, Duncan, Chippy and I take part in the Banchory Beast Race.....time to get training :-)

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    4 months ago

    Michael Ross started crowdfunding

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    Page last updated on: 10/3/2018 3:28 PM

    Supporters

    90

    • Jayne Warden

      Jayne Warden

      Oct 3, 2018

      Good show on competing and completing for this great cause.

      £30.00

    • Mary Dempster

      Mary Dempster

      Sep 29, 2018

      Well done.

      £10.00

    • FIONA WILKINS

      FIONA WILKINS

      Sep 26, 2018

      Well done .... Max is an amazing wee boy

      £20.00

    • Louise, Darren and girls. x

      Louise, Darren and girls. x

      Sep 25, 2018

      Well done! Hope you have all recovered.

      £20.00

    • Mike Ross

      Mike Ross

      Sep 24, 2018

      Ross family and friends

      £100.00

    • Christine Donoghue

      Christine Donoghue

      Sep 24, 2018

      £5.00

    • Joy Lorimer

      Joy Lorimer

      Sep 24, 2018

      Well done lads!

      £10.00

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    About the fundraiser
    Michael Ross

    Michael Ross

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