My Partner Michael of 5 years. Age 32. Who is the loving father to our 3 wonderful children aged three, one and eight months was diagnosed with Focal segmental glomerulosclerosis (FSGS). Which is a cause of nephrotic syndrome in children and adolescents, as well as a leading cause of kidney failure in adults.
After 2 years of dialysis Michael was given a donor from his mum in 2016. Two years later, August 2018 the kidney started rejecting leaving him with no kidneys at all..
Michael is now on full time dialysis. Life dependant on a Dialisys Machine to keep his body functioning.
His quality of life is next to non on dialisys days. Due to renal failure side effects he spends majority of his time in bed lifeless, unable to eat, being sick , excessive fluid retention, extreme migraines, restless legs, extreme itchiness and poor circulation.
He has now built antibodies against 91% of the UK popultion for a matching donar.
Leaving us to find the Rare 9% in the UK for a living or deceased kidney donor.
We are currently searching for Michaels match.
Private treatment would result in tests for the matching doner and the operation itself to be done within a month and not be on the prolonged waiting list of the NHS
The quicker we can get Michael off dialisys the better for his Health.
(double edge sword) he can't live without it but the longer he's on it he's open to other health problems.
He has deteriorated quicker than last time due to now not having any kidneys. With this disease time isn't on your side.
We are working hard with fundraisng events and Making Green Car Bows to help raise awareness. You can find more updates on FightWithMichael on Facebook..
Please please help me to give the Man who is my every breath and my babies Daddy his life back...'