Mikee is aiming to lose his first 2 Stone to help Jenson.
Jenson has a medical condition with the name, Spinal Muscular Atrophy (SMA) Type 2, Jenson is completely dependent on his parents for all of his needs, 24 hours a day.
The family need adaptations to their home to enable Jenson to grow and progress in a safe and suitable environment & his family all want to stay in their family home. Jenson has been awarded a Grant of £30,000 from our local Council. However the adaptations that need to be done to the house is going to cost around £60,000, So we have to raise £30,000 which will be done by fundraising and events.
The work that is needed include a Single Storey Extension to the back of our house, A Ramp, Widening of Doorways, Removal of downstairs walls, Wet room, Installation of a ceiling track & Hoist, amongst other works. This will help Jenson a lot as he will have his own room that he can access with his wheelchair, he will get heavier when older.
Jenson was diagnosed with SMA when he was 14 months old and as you can imagine our world felt like it was torn apart.
There is no cure for Jenson's condition, it is a genetic disease that causes Muscle weakness and progressive loss of movement. This occurs due to deterioration in the nerve cells (motor Neurones) connecting the brain and spinal cord to the body's muscles.
As the link between the nerves and muscles breaks down, the muscles that are used for activities such as crawling, walking, sitting up, and moving the head become progressively weaker and shrink (atrophy), Mental abilities are unaffected by SMA. There is no treatment for his condition and if Jenson becomes ill it effects him so much worse than a normal child of his age. Jenson can go downhill fast for even just what would be a simple cough and cold, It is a worry when he is ill and we are constantly checking his breathing as this could be dangerous for him and he could end up in hospital.
At present there is no cure for SMA.