Weʼre raising £100,000 to help fund special equipment/genetic testing and/or clinical trials for Mikeys eye condition of 'Rod Cone Dystrophy'
- 3 days to go
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Mikey was born in 2010 a perfectly healthy baby with no problems at all. When Mikey turned 6yrs old we took him for a random eye test where the optician noticed something not quite right with the retina which sits at the back of his eyes. A few months later he was diagnosed with a rare eye disease called 'rod cone dystrophy' or 'retinitis pigmentosa', and the doctors told us he would eventually go blind. They could not confirm how long it would take but mentioned could potentially take decades. Mikey was fully sighted at this point.
Mikey lost his vision completely within 18 months by the time he was just over 7yrs old.
Mikey always loved playing and watching football, and especially attending the Emirates to watch Arsenal. He loved football so much he always dreamt of being a footballer and refused to give up on his dream. As devastating and difficult as it was, he persevered with football despite his vision loss and practised every day, adapting his style of play and homing in on his other senses. Soon after losing his vision at 7yrs old he was scouted to train for the England National Football team, the youngest ever blind person to be scouted to play for England.
Our aim in life is to find a cure for Mikeys blindness, and other peoples around the world. We hope to achieve this by funding a team to screen Mikeys bloods to firstly identify the gene (or set of genes) responsible for this. Once identified we will begin clinical trials with the end goal being an effective gene therapy to cure this devastating eye disease.
Mikeys motto is "Impossible Is Nothing" and "Never Give Up". We must believe there will be a cure one day. Check out Mikeys social media accounts (Instagram/Twitter/Facebook/Youtube/LinkedIn) to be amazed and inspired!
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- 4 years ago
John Poulli4 years ago
Thanks all for your donations 🙏🏼❤️
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John Poulli started crowdfunding
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Apr 15, 2023
Dec 2, 2022
Wishing your angel all the best!
Dec 1, 2022
Apr 9, 2022
Apr 9, 2022
Well done to the Hinton and Finchley football club for putting on a day for great causes. Mikey, you continually amaze me daily. Love you and your family lots. Uncle Alex x
Christos and Elena Christou
Apr 8, 2022
Apr 7, 2022
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About the fundraiser
I'm John Poulli, Mikey's proud dad. My aim in life is to raise enough awareness to find my son a cure for his blinding condition. In the meantime I am sharing and celebrating his amazing talent, courage and determination as a blind footballer. The World deserves to know Mikey.