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Inga is our beloved daughter. She is 6 years old now. She is smart and beautiful girl. We are very proud of her.
But we cannot be fully happy because she is affected with Spinal Muscular Atrophy (SMA). Severe disease makes her muscles weaker every day. Inga has never walked. She cannot stand independently anymore. She is not able to do many things that a 6-year-old usually can do.
We can help our daughter in few different ways: e.g. by doing day-to-day physiotherapy or by giving her specialist orthopaedic equipment.
But in May 2017 Inga has started a treatment in Milan (Italy) and now we are totally focused on that. It is medical trial of a new SMA drug (Risdiplam) that supports copy of the gene Inga is missing and keeps motor neurons alive. As a result it should give more strength to Inga's muscles. We really count on that!
As you probably can imagine living in Milan is very expensive. Without your help it would be extremely difficult for us to cover all necessary costs.
To make our dreams come true we need your generosity and support. Inga's dad and brother will run to raise awarness about SMA and about our litlle girl who is fighting for her future. Please donate regardless of the amount. Every penny matters.
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Tomasz Figurski started crowdfunding