I've raised £50000 to help Kamila, who is 21 years old and she has Blood disease, nightly paroxysmal hemoglobinuria which is a rare disease. Everyday is countable

Organised by Milena Kowalik
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Croydon, United Kingdom ·Health and medical

Story

Kamila is a 21 years old girl, who has been sick for half of her life. She is in pain since she was 13 years old. Kamila has Blood disease, nightly paroxysmal hemoglobinuria. It's very rare sickness affecting her life she would wish to have as like every healthy human has. She needs urgent marrow transplant. However, her health is in bad condition and she is too weak to have it done now. For that reason she needs to be treated well before she will go for transplatation of marrow. The drug that must be given is called soliris and one dose costs about £10,000. In first month she has to take 4 doses which will cost about £40,000. Plus second month 3 doses. And if she will be feeling well to have marrow transplate it will be enough. However, after transplantation it will be up to her wellbeing if she needs to have further doses of Soliris given. If yes it is another cost. The treatment can not be stopped as it will cause her to death. The money that her family collected is still not enough to start the treatment. I would love to help her. She is in my age and definitely too early to die. Let's help her and give her chance for normal life that she deserves. Collecting money for drug called Soliris will save Kamila's life.

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About fundraiser

Milena Kowalik
Organiser

Donation summary

Total
£20.00