Meet Miley, she has just celebrated her 7th birthday!

At birth Miley suffered from hypoglycemia and went on to develop West Syndrome (Infantile Spasms) at 4 months old

Investigations during that diagnosis at almost 7 months old found she had also suffered brain damage, she is subsequently globally delayed and she's non-verbal. We've recently heard from the genetics team that the DDD (deciphering developmental disorders) study has found something in her DNA but we await confirmation of what that diagnosis is.

Miley has been growing her hair since it started growing :) and is now going to have it cut off to donate the hair to The Little Princess Trust to make wigs for children going through cancer treatment and other hair loss. Miley's sister Isabel donated 16" of her hair 4 years ago. Miley plans to smash that by donating approx. 20"

Alongside the hair donation we are raising funds to split between The Little Princess Trust and Miley’s school, Wadebridge Primary Academy.

Thank you for taking the time to visit her page and donating :)

UPDATE!!

Hair cut day 02.10.2018

22 inches!!!

Shes very pleased with her new hair! ❤️