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£12,037raised of £12,000 target by 238 supporters

Weʼre raising £12,000 to help Adam, my amazing nephew with Spinal Muscular Atrophy get an expensive walking aid and to support The Annabelle Rose Foundation.

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

Spinal Muscular Atrophy (SMA) is a chronic muscle wasting disease that is responsible for the highest infant mortality rates across the developed world in under 2's. 1 in 6,000 - 1 in 10,000 children are born with the disease. 1 in 40 - 1 in 50 people are carriers of the SMA disease.

My beautiful and bright 15 month old nephew Adam Baughn is coming to terms with being diagnosed with Type 2 of this devastating disease. I've decided to try and help him in a very small way by raising money for a much needed walking aid to enable help him become as active as possible. I shall be running the Dublin marathon alongside a few amazing and dedicated friends, Mark Rogers, Ben Tracey and Euan Thomas. The walking aid we are trying to raise the money for is called the 'Innowalk' and currently UK Government funding is not available to pay for this innovative and significantly beneficial device. You can view the product at www.madeformovement.com.

On top of raising money for specifically for Adam, we are also looking to raise general awareness of Spinal Muscular Atrophy and show our support to The Annabelle Rose Foundation (http://www.annabellerosefoundation.co.uk/), who are dedicated to providing help & support to families affected by SMA. Every penny over the 12,000 pounds target posted to the crowdfunding page we raise will go to The Annabelle Rose Foundation. To help ensure we go well above our target a number of other events have been and are being organised by loving friends and family of Adam - to name just a few a quiz night, bingo and bake sales.

We would truly appreciate any donation towards this worthy cause and by doing so allowing Adam greater mobility and a better quality of life.

Many thanks

Laurence and team.

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Laurence Baughn

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    6 months ago

    Laurence Baughn started crowdfunding

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    Page last updated on: 1/10/2019 13.08

    Supporters

    238

    • Anonymous

      Anonymous

      Jan 10, 2019

      £10.00

    • Anonymous

      Anonymous

      Jan 7, 2019

    • Colleagues of Caroline Baughn

      Colleagues of Caroline Baughn

      Jan 6, 2019

      £323.00

    • Robin Parry

      Robin Parry

      Dec 24, 2018

      Daniel raised an extra £110 from his 5K run to add to the total !

      £110.00

    • Kimberley Smillie

      Kimberley Smillie

      Dec 20, 2018

      So glad we were able to help be a part of fundraising to make a difference for Adam. Thanks to Karyn for hosting a fun boxing class. Kim x

      £5.00

    • estelle massoubre

      estelle massoubre

      Dec 19, 2018

      Our best wishes for Adam. From the JnJ Maidenhead R&D team.

      £25.30

    • Nigel Udall

      Nigel Udall

      Dec 6, 2018

      Great work for a great cause. Sorry we couldn’t make the quiz (gap yah forces absence!).

      £20.00

    Laurence Baughn

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    Laurence Baughn

    Laurence Baughn

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