Weʼre raising £1,500 to Help us to get roman seizure alerting equipment and for any future support for roman and our family 💜🥊
- Liverpool, UK
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This page was originally set up by a friend from our girls school who felt this would help, iv since taken over the page myself an will update as often as i can, first of all i want to thank everyone who has donated so far im overwhelmed by your generosity from friends-people i know of to compelte strangers and to the anonymos ones also im so so grateful ❤️🙏🏻
I wont do a day-day blog of whats happened but ill try to cover as much as i can so im moe im 27 and im a mum to 4.. 3 girls an one boy.. on the 18th april our happy healthy baby boy roman who was 9months old to the day was playing on the floor with his big sister heidi who is just 3 , it was mid morning when he went into a full tonic clonic (grandmal) seizure at the time i didnt no what this was he was foaming from the mouth blue an lost conciousness i was screaming crying pleading someone to help save my baby ambulances arrived oxygen was given we was rushed to alderhey an well from this day on our lives have been turned upside down and somedays came to a stand still this was just the start to what was to come after so many seizures,tests, hospital stays an tears on may 23rd we was given a diagnosis for roman EPILEPSY 💔 (the day my world fell apart around me )
today is june 30th 2018 73 days since romans first seizure and out of these 73 days we have spent a total of 24 days as an inpatient in hospital, roman has had 31 seizures in 73 days 💔 he has had 3 eegs,ecg,mri,ct, toxins, genetics, 2 lumbar punctures an unbelievable amounts of bloods an medicines. We have spent over £1017 on car parking an we havent worked since this all began out of fear of misisng something or not being there.. we have had so many tests an we still wait more tests an more reaults..
this has literally turned our lives upside down and this page was set up to help us out in this horrific time an to help us along the way, we are struggling finacially, emotionally,physically an every other way but we are still going because we have to for our baby boy and our beautiful girls..
we need to buy a sats monitor and a seizure mat to alarm us during the night, the cost of these is £1400, we also need to pay our bills an keep everything going at home an not fall behind but now coming up to the 4th month out of work we are struggling, we want to take our family for days out, little break away somewhere for romans birthday an just try to be the same fun family weve always been, but things are not fun anymore everything is just scary sad an like a waiting game we do our best as a family to keep normality but how is having a baby permantly fixed to your hip normal even when you pee to when you butter morning toast to when your lifting your other children on an off the swing.. roman is not let out of my eye sight, he cant be let out of eye sight nto for a secosn we dont sleep at the minute because we take it in turns to watch roman sleep incase anything happens an we miss it, we get more irritated with our girls because we are permantly scared anxious something is going to hapPen, i cant be alone with my children anymore incase anything happens, so so much has had to change in our lives an i just needed to do something to help my family anyway i can because we are struggling in every single aspect at the minute 💔 thankyou for taking the time to read above and please donate /share 💜💪🏼
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- 1 month ago
Moe Chadwick1 month ago
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Aug 6, 2018
Hotel glebe auction. Anglers Charity Auctions
Aug 4, 2018
Donation from Nick&Kell & Lac De Premiere. ((Anglers charity auctions)) . Best of luck to baby Roman an his journey RegNick
Aug 4, 2018
Sorry i cant make the fundraiser Kurtis, great work on hitting your target. Hope the family are doing well. See you around fella 🤙🏻
James Daniel Morris
Aug 3, 2018
Hope this helps xxxx
Aug 1, 2018
Hope this helps .Jo xx
Jul 31, 2018
This is our donation from our fundraising as we cannot be at your event as we are from Norfolk.Love from The Tia's Treasures Team www.TiasTreasures.net
Jul 31, 2018
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About the fundraiser
Roman has had epilepsy since April 2018 This is a long challenging journey we are on and we would like to thank every single person for there support 💜
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