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Closed 15/09/2017

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£0raised of £28,000 target by 0 supporters

    Weʼve raised £0 to help a mother’s desperate plea for her son who is suffering from a progressive neuro-degenerative disease.

    Location
    Huddersfield, United Kingdom
    Time left
    Closed on Friday, 15th September 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    As a mother I am in desperate need of your help and support. My son Moazam Shahbaz suffers from Niemann Pick Type C which is rare genetic disorder that has left him completely disabled, dependent on carers and requiring 24 hour care.

    As a family we have finalised the purchase of a property and prior to the move work needs to be completed converting the parking garage to a disabled accessible conversion which will form a bedroom and bathroom including all furnishings and full disabled access to the private rear garden (including reconfiguring, landscaping and ramps). The architect has finalised the plans and also completed the tender for the project.

    Our current home does not meet Moazam’s needs due to the lack of space, cramped conditions which makes manoeuvring Moazam a risk. Due to the size difference of the parking garage which is going to be converted, Moazam will not be at risk due to space and this will give more room and freedom to Moazam who is wheelchair bound and requires hoisting. As a family we have used all our life savings to purchase our new home. It has taken the family over 3 years to find a suitable property that will meet Moazam’s needs. If we cannot raise the funds the conversion cannot be completed and Moazam will need to go to respite until funds can be raised. As a mother this is a situation I want to avoid and I want my son at home with the family.

    The progression of Niemann-Pick Type C has caused Moazam to have the following issues:
    Unpredictable periods of inconsolable distress, Psychosis and dementia.
    Seizures, which are very severe and frequent in nature.
    No Longer able to speak and communicate.
    Lost the majority of his motor skills and control.
    Is no longer able to weight bear and is thus wheelchair bound.
    Supplementary feeding required through stomach tube and is now completely incontinent.
    Requires 24 hour, 7 days per week care.

    Thank you for your support. Please donate and share with friends.

    Updates

    2

    • Humera Kashif8 months ago
      Humera Kashif

      Humera Kashif

      8 months ago

      Dear Friends, As a family we are in desperate need of your help and support. I am writing today to ask for your help to promote the crowd funding pages for my disabled son on your social media platforms (Facebook, Twitter, Instagram etc.) Kind regards, Humera I have been desperately trying to crowd fund for some time now however we have had no success in raising funds and the work is due to commence the next week.

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    • Humera Kashif9 months ago
      Humera Kashif

      Humera Kashif

      9 months ago

      Dear Friends, The plans for the conversion are now complete. Please donate and share with friends.

      Update from the Page owner

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    9 months ago

    Humera Kashif started crowdfunding

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      About Crowdfunding
      About the fundraiser
      Humera Kashif

      Humera Kashif

      Huddersfield, United Kingdom

      My son Moazam Shahbaz, now 27 years old was diagnosed in 2007 with Niemann-Pick Disease Type C (NPC) after I spent several desperate years seeking a diagnosis before NPC was identified. NPC is a rare inherited neurodegenerative life limiting disease. Please help to support my son

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