As a mother I am in desperate need of your help and support. My son Moazam Shahbaz suffers from Niemann Pick Type C which is rare genetic disorder that has left him completely disabled, dependent on carers and requiring 24 hour care.

As a family we have finalised the purchase of a property and prior to the move work needs to be completed converting the parking garage to a disabled accessible conversion which will form a bedroom and bathroom including all furnishings and full disabled access to the private rear garden (including reconfiguring, landscaping and ramps). The architect has finalised the plans and also completed the tender for the project.

Our current home does not meet Moazam’s needs due to the lack of space, cramped conditions which makes manoeuvring Moazam a risk. Due to the size difference of the parking garage which is going to be converted, Moazam will not be at risk due to space and this will give more room and freedom to Moazam who is wheelchair bound and requires hoisting. As a family we have used all our life savings to purchase our new home. It has taken the family over 3 years to find a suitable property that will meet Moazam’s needs. If we cannot raise the funds the conversion cannot be completed and Moazam will need to go to respite until funds can be raised. As a mother this is a situation I want to avoid and I want my son at home with the family.

The progression of Niemann-Pick Type C has caused Moazam to have the following issues:
Unpredictable periods of inconsolable distress, Psychosis and dementia.
Seizures, which are very severe and frequent in nature.
No Longer able to speak and communicate.
Lost the majority of his motor skills and control.
Is no longer able to weight bear and is thus wheelchair bound.
Supplementary feeding required through stomach tube and is now completely incontinent.
Requires 24 hour, 7 days per week care.

Thank you for your support. Please donate and share with friends.