Weʼve raised £19,237 to The Moin Younis Fund
- Funded on Thursday, 7th March 2019
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The Mo Fund is a group of people who want to help Moin Younis and his family.
Moin won the Teenager of Courage Award at the 2017 Pride of Britain Awards, he is also a proud ambassador for the Acorns Children's Hospice, Birmingham. Moin suffers from the rare genetic disorder Epidermolysis Bullosis (EB), which makes his skin very fragile. He endures a painful five-hour regime every day to bandage his skin.
There is a new clinical trial led by a European team which could help Moin, however it is only available in Austria. The treatment is an ambitious attempt to treat the skin with genetically modified skin grafts.
It is important to understand that there are significant hurdles. Firstly, Moin will need to be clinically eligible for this treatment and even then he will need to apply to be accepted onto the trial, there are no guarantees that this will happen.
However, if he is successful in being accepted for the trial, there will be a significant cost implication which would make it impossible for him to undertake this without help.
Moin will need up to £250,000 to enable him and his family to go ahead. This would cover all of his day-to-day medical treatment costs while abroad (yet out of hospital), the actual trial if he is accepted, if he is accepted, is funded. His medical care team and family will also need support whilst living abroad, not to mention pre and post clinical assessments, all of which could continue for over two years.
We are currently working closely with Moin, his parents and his medical care team in progressing towards this and we will keep all supporters regularly updated on his progress.
Moin was told he would not live past the age of one. He has just celebrated his 18th birthday, which shows he is a fighter!
He will never fully heal or be cured, but with this fund we hope to give him the financial support he will need if his application is successful, giving him a better quality of life going forward, which he richly deserves.
- 3 years ago
Moin Fund3 years ago
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Jan 21, 2019
We should all be humbled by your incredible attitude to life. The way you deal with your suffering is truly heroic. I’ll even add a shout out for Villa !!
Jan 12, 2019
Good luck with getting your treatment Moin. You are an inspiration XXX
Dec 8, 2018
Nov 4, 2018
Oct 25, 2018
I LOVE YOU AND GOD DOES TOO, MOIN YOUNIS.
Joana Da Silva
Sep 16, 2018
All my love for you and your braveness!!!!XxJoana Da Silva
Sep 16, 2018
May the Almighty grant you and your family ultimate ease, patience, health, wealth and happiness.
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