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£18,772raised of £250,000 target by 558 supporters

Weʼre raising £250,000 to The Moin Younis Fund

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Story

The Mo Fund is a group of people who want to help Moin Younis and his family.

Moin won the Teenager of Courage Award at the 2017 Pride of Britain Awards, he is also a proud ambassador for the Acorns Children's Hospice, Birmingham. Moin suffers from the rare genetic disorder Epidermolysis Bullosis (EB), which makes his skin very fragile. He endures a painful five-hour regime every day to bandage his skin.

There is a new clinical trial led by a European team which could help Moin, however it is only available in Austria. The treatment is an ambitious attempt to treat the skin with genetically modified skin grafts.

It is important to understand that there are significant hurdles. Firstly, Moin will need to be clinically eligible for this treatment and even then he will need to apply to be accepted onto the trial, there are no guarantees that this will happen.

However, if he is successful in being accepted for the trial, there will be a significant cost implication which would make it impossible for him to undertake this without help.

Moin will need up to £250,000 to enable him and his family to go ahead. This would cover all of his day-to-day medical treatment costs while abroad (yet out of hospital), the actual trial if he is accepted, if he is accepted, is funded. His medical care team and family will also need support whilst living abroad, not to mention pre and post clinical assessments, all of which could continue for over two years.

We are currently working closely with Moin, his parents and his medical care team in progressing towards this and we will keep all supporters regularly updated on his progress.

Moin was told he would not live past the age of one. He has just celebrated his 18th birthday, which shows he is a fighter!

He will never fully heal or be cured, but with this fund we hope to give him the financial support he will need if his application is successful, giving him a better quality of life going forward, which he richly deserves.

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Updates

1

  • Moin Fund4 months ago
    Moin Fund

    Moin Fund

    4 months ago
    Update from the Page owner

    Share this update to help us raise more

4 months ago

Moin Fund started crowdfunding

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Page last updated on: 5/16/2018 5:57 AM

Supporters

558

  • May Isen

    May Isen

    May 16, 2018

    £10.00

  • Gabe

    Gabe

    May 15, 2018

    Top man!

    £10.00

  • K M

    K M

    May 14, 2018

    £50.00

  • Anonymous

    Anonymous

    Apr 24, 2018

  • Anonymous

    Anonymous

    Apr 23, 2018

    Good luck with the treatment

  • Anonymous

    Anonymous

    Apr 23, 2018

    Moin, you are a class act and very funny, too. It was great to meet you yesterday, and I really hope you manage to meet your target because if anyone deserves a better quality of life, it's you!

    £20.00

  • Neelmani Pathak

    Neelmani Pathak

    Apr 23, 2018

    £30.00

About the fundraiser
Moin Fund

Moin Fund

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