Hello everyone,

It's me Molly Dolly :)

As some of you may already know, I was officially diagnosed with Rett Syndrome in October last year. Rett Syndrome is an incredibly rare neurological disorder causing severe mental and physical disabilities.

I am now in the regression stage of the syndrome which has left me unable to walk, talk and use my hands. I get very distressed and have several screaming episodes each day which are sadly out of my control. I have problems sleeping and difficulty eating, chewing and swallowing. Very soon, I am expected to develop breathing problems and seizures.

Things are very hard for me at the moment and will get even tougher as I get bigger and older. I will continue to need lots of specialist care, equipment and therapy to improve my quality of life. Your kind donations will help make this possible.

Rett syndrome controls every aspect of my life but I refuse to let it take away my smile!!!

Thank you to all my friends and family who continue to support me :)

Lots and lots of love,

Molly Dolly xxxx