49%
£9,917raised of £20,000 target by 316 supporters

Weʼre raising £20,000 to help me, Molly Dolly fight Rett Syndrome!

Time left
29 days to go

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Crowdfunding is the new way to raise money for a personal cause on JustGiving.

Story

My name is Molly, I am 21 months old and have a wicked sense of humour. I also love spending time laughing with my baby sister Phoebe. I am asking you to help keep the smile on my face!

I have just been diagnosed with Rett Syndrome. It affects roughly 1 in 12,000 females and can cause severe mental and physical disabilities. I have listed some of these below:

- irregular heart beat
- inability to feed
- loss of use of my hands
- slowing head growth
- curvature of my spine
- seizures
- loss of mobility
- floppiness and stiffness of my limbs
- breathing problems
- inability to speak and communicate even when I am in pain
- periods of distress, irritability and screaming

Because of this I will be lucky to make it to middle age. I am going to need lots of extra help throughout my life and around the clock care.

I am also going to need lots of specialist equipment and extra therapy to try and keep me as healthy as possible. The only problem is it's a bit pricey!

One of the first things I am going to need is a Innowalk, it looks a bit like a cross trainer and will improve my range of motion and joint flexibility. This alone is going to cost my family thousands of pounds that they haven't got.

Hopefully there will one day be a cure for this syndrome and perhaps I will get to experience this. This is why I want to stay at my healthiest!

Any contribution towards this will help my family and me lots!

Lots of love, hugs, and kisses,

Molly Dolly

xxxxxxxxxxxx

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    3 months ago

    Jessica Cook started crowdfunding

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    Supporters

    316

    • Angie Cook

      Angie Cook

      Jan 19, 2017

      Happy belated birthday Molly ❤️💛💚

      £20.00

    • Gavin Brake

      Gavin Brake

      Jan 17, 2017

      Hi Jessica, my crazy sister Rachel cut off all her hair & my business, Gordano Carpets Limited in Portishead, has donated £100 to help you. Best regards from the team at Gordano Carpets.

      £100.00

    • Anonymous

      Anonymous

      Jan 17, 2017

      £10.00

    Jessica Cook

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    Jessica Cook

    Jessica Cook

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