Your friends are fundraising. Don't miss out, opt in.

We did it!

Michelle Smith raised £2,704 from 66 supporters

or

Start your own crowdfunding page

Closed 24/12/2021

0%
£2,704
raised of £1,000 target by 66 supporters

    Weʼve raised £2,704 to Miles Hobbs and family. Miles lives with Lissencephaly, a rare brain disease. Find out more in the story below. Thank you for helping x

    Hitchin
    Funded on Friday, 24th December 2021

    Don't have time to donate right now?

    Story

    Miles' parents Nataly and Duane are clients of mine at The Pilates Pod, and Duane and I went to school together. I have watched them battle, fight, struggle, cry, break down, and continue every day, to get to the bottom of the constant seizures that have taken over Miles' life.

    His is diagnosed with Lissencephaly. A typical scan of a human’s brain will reveal many complicated wrinkles, folds, and grooves. This is how the body packs a large amount of brain tissue into a small space. The brain starts to fold during fetal development. But some babies brains don’t fold properly and remain smooth. This condition can affect a baby’s neural function and symptoms can be severe.

    Lissencephaly can’t be reversed. Treatment aims to support and comfort. Children like Miles may need help swallowing, they may need surgery to shunt fluid away from the brain, they may suffer with many seizures and they may fail to develop mentally beyond a three- to five-months old function.

    One day, Duane came into my studio, The Pilates Pod to book Nataly back into some well needed Pilates sessions for her own body, her own respite, her own mental wellbeing. Duane broke down with worry for Miles, for Nataly, for them all.

    The next day, Miles was transferred from Lister Hospital to GOSH (Great Ormond Street) as his condition worsened. Parents Nataly and Duane's approach with Miles has always been "to try everything, something has to work."

    So I knew I needed to help in any way I could. Because they are my clients, my friends, because I am a mum, because it's Christmas, because we have had two years of realising through the pandemic that health is everything and helping others is the most important you can do.

    The Pilates Pod are running a very special charity Xmas Eve Class - Matwork for Miles. 9.30-10.30am on 24th December. You can join in at the studio, or online. Find out more here. We will using Just Giving throughout December to raise awareness of Lissencephaly and help fundraise to reach our target of £1,000 for the family to help Miles with his therapy, time out together, equipment and just making memories.

    Thank you for reading. Please dig deep! x

    Updates

    0

    Michelle Smith

    Updates appear here

      3 years ago

      Michelle Smith started crowdfunding

      Leave a message of support

      Page last updated on: 12/24/2021 15.21

      Supporters

      66

      • Leston

        Leston

        Dec 24, 2021

        Merry Christmas and all the best

        £30.00

      • Lisa

        Lisa

        Dec 23, 2021

        £10.00

      • Anonymous

        Anonymous

        Dec 23, 2021

      • Cris

        Cris

        Dec 23, 2021

        All the best for Miles and the necessary research to help solve this rare disease

      • Alan Cant

        Alan Cant

        Dec 23, 2021

        Well done Ed, this is a fantastic cause!

        £30.00

      • Louie Burke

        Louie Burke

        Dec 22, 2021

        £50.00

      • Anonymous

        Anonymous

        Dec 21, 2021

        £50.00

      What is crowdfunding?

      Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

      The page owner is responsible for the distribution of funds raised.

      Great people make things happen

      Do you know anyone in need or maybe want to help a local community cause?

      Create you own page and donʼt let that cause go unfunded!

      About Crowdfunding
      About the fundraiser
      Michelle Smith

      Michelle Smith

      Hitchin

      Owner of The Pilates Pod with my hubby Ed Smith. Mum of 2 gorgeous kids.

      Report this Page