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Michelle Smith

Michelle Smith is crowdfunding

69%
£690
raised of £1,000 target by 12 supporters

Weʼre raising £1,000 to Miles Hobbs and family. Miles lives with Lissencephaly, a rare brain disease. Find out more in the story below. Thank you for helping x

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Story

Miles' parents Nataly and Duane are clients of mine at The Pilates Pod, and Duane and I went to school together. I have watched them battle, fight, struggle, cry, break down, and continue every day, to get to the bottom of the constant seizures that have taken over Miles' life.

His is diagnosed with Lissencephaly. A typical scan of a human’s brain will reveal many complicated wrinkles, folds, and grooves. This is how the body packs a large amount of brain tissue into a small space. The brain starts to fold during fetal development. But some babies brains don’t fold properly and remain smooth. This condition can affect a baby’s neural function and symptoms can be severe.

Lissencephaly can’t be reversed. Treatment aims to support and comfort. Children like Miles may need help swallowing, they may need surgery to shunt fluid away from the brain, they may suffer with many seizures and they may fail to develop mentally beyond a three- to five-months old function.

One day, Duane came into my studio, The Pilates Pod to book Nataly back into some well needed Pilates sessions for her own body, her own respite, her own mental wellbeing. Duane broke down with worry for Miles, for Nataly, for them all.

The next day, Miles was transferred from Lister Hospital to GOSH (Great Ormond Street) as his condition worsened. Parents Nataly and Duane's approach with Miles has always been "to try everything, something has to work."

So I knew I needed to help in any way I could. Because they are my clients, my friends, because I am a mum, because it's Christmas, because we have had two years of realising through the pandemic that health is everything and helping others is the most important you can do.

The Pilates Pod are running a very special charity Xmas Eve Class - Matwork for Miles. 9.30-10.30am on 24th December. You can join in at the studio, or online. Find out more here. We will using Just Giving throughout December to raise awareness of Lissencephaly and help fundraise to reach our target of £1,000 for the family to help Miles with his therapy, time out together, equipment and just making memories.

Thank you for reading. Please dig deep! x

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Michelle Smith

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    13 days ago

    Michelle Smith started crowdfunding

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    Page last updated on: 11/28/2021 18.19

    Supporters

    12

    • Paula Sanders

      Paula Sanders

      Nov 28, 2021

      £10.00

    • Anonymous

      Anonymous

      Nov 26, 2021

      £20.00

    • Kevin lisa & Alfie

      Kevin lisa & Alfie

      Nov 26, 2021

      Please keep your spirits up we spent nearly 3 weeks on the neuro ward at GOSH with our child and they truly are the best.Kevin Lisa & Alfie

      £10.00

    • Anonymous

      Anonymous

      Nov 25, 2021

      £10.00

    • Anonymous

      Anonymous

      Nov 23, 2021

      £30.00

    • Anonymous

      Anonymous

      Nov 23, 2021

      £10.00

    • Zoe Shearn

      Zoe Shearn

      Nov 23, 2021

      Love you guys xx

      £25.00

    Michelle Smith

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    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    About the fundraiser
    Michelle Smith

    Michelle Smith

    Hitchin

    Owner of The Pilates Pod with my hubby Ed Smith. Mum of 2 gorgeous kids.

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