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Nichola Robson raised £1,747.41 from 51 supporters
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Closed 31/10/2017
Iʼve raised £1,747 to raise money to pay for a private consultation with a neurologist and possible private health care plus go towards travelling to London.
- Gainsborough, United Kingdom
- Funded on Tuesday, 31st October 2017
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Story
Lots of people ask us if Daisy has always had epilepsy. The answer is no. 4 years ago Daisy had her appendix removed and since then her health has deteriorated.
She was studying for an NVQ level 3 in sports at college when she started to have severe chest pains and collapsing during exercise. Doctors thought at first she had had a stroke, then considered meningitis but after a few weeks and more seizures they diagnosed epilepsy. Since then we have been through some of the most horrendous times of our lives.
Because Daisy wasn't responding to anti epileptic drugs she was referred to a hospital in Sheffield where a Professor, without seeing Daisy's seizures or reading her EEG which was originally used to diagnose her epilepsy, called her a faker, threatened to report her to the police and took her off of all her meds.
It was horrific. It was put in her notes and we spent nearly 15 months fighting for someone to listen to us.
Unfortunately the Drs we ended up seeing in our visits to A&E were too afraid to go against the Prof from Sheffield. They would treat her for epilepsy until they read her notes then they would take treatment away from her. I overheard nurses once say ' if we treated an animal like this we would be arrested'. That was my daughter they were talking about, my baby, my precious girly who was so terrified of Drs she would beg me not to call for an ambulance if her seizures were bad.
We as a family have all changed through this and I know despite how horrible, scary and tiring it can be we have changed fir the better. If Daisy fights we fight with her and if she can't fight we carry her and love her until she can fight again.
Updates
4
- 7 years ago
Nichola Robson
7 years agoShare this update to help us raise more
- 7 years ago
Nichola Robson
7 years agoI went to bed feeling hopeless, afraid for Daisy and just eating to hide and cry. I thought would have a quick check of Daisy's Journey as I couldn't sleep. The words 'thank you' seem so small. But they are all I can say.. thank you from the bottom of our hearts. Every penny you have given will be used to find the answers that Daisy desperately needs. Thank you with all the love we can share xxx💕💕
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- 7 years ago
Nichola Robson
7 years agoWow, thank you so much for your donations. It's mind blowing!!!!
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Nichola Robson started crowdfunding
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Supporters
51
J Blenkin
Oct 29, 2017
Sending you lots of love xxxx
£140.00
Gill Goldstone
Oct 25, 2017
Wishing you all the very best of luck, from all the RC drivers at Chelmsford Carpet Oval Race Club xx
£67.41
Julia Pattison
Sep 29, 2017
With love x
£10.00
Mandy Troop
Sep 29, 2017
Hope it helps a little
£20.00
Anonymous
Sep 29, 2017
At target! 😘 Much love xx
£133.00
sara smith
Sep 28, 2017
Only a small amour but good luck hunni. Xx
£10.00
Lisa Hart
Sep 27, 2017
Thinking of you both xxxxx
£20.00
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About CrowdfundingAbout the fundraiser
Nichola Robson
Gainsborough, United Kingdom
I'm raising funds on behalf of Nichola Robson and her daughter Daisy. For more info go to their Facebook page https://www.facebook.com/pg/daisymaysjourney