Lots of people ask us if Daisy has always had epilepsy. The answer is no. 4 years ago Daisy had her appendix removed and since then her health has deteriorated.

She was studying for an NVQ level 3 in sports at college when she started to have severe chest pains and collapsing during exercise. Doctors thought at first she had had a stroke, then considered meningitis but after a few weeks and more seizures they diagnosed epilepsy. Since then we have been through some of the most horrendous times of our lives.

Because Daisy wasn't responding to anti epileptic drugs she was referred to a hospital in Sheffield where a Professor, without seeing Daisy's seizures or reading her EEG which was originally used to diagnose her epilepsy, called her a faker, threatened to report her to the police and took her off of all her meds.

It was horrific. It was put in her notes and we spent nearly 15 months fighting for someone to listen to us.

Unfortunately the Drs we ended up seeing in our visits to A&E were too afraid to go against the Prof from Sheffield. They would treat her for epilepsy until they read her notes then they would take treatment away from her. I overheard nurses once say ' if we treated an animal like this we would be arrested'. That was my daughter they were talking about, my baby, my precious girly who was so terrified of Drs she would beg me not to call for an ambulance if her seizures were bad.