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Natalie Muller raised £19,751 from 389 supporters

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Closed 31/12/2017

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£19,751raised of £25,000 target by 389 supporters

    Weʼve raised £19,751 to take Charlee to innovative therapy 4 kids in America

    Funded on Sunday, 31st December 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    Charlee was diagnosed with Mobieus syndrome at 3 months old. Mobieus syndrome is a very rare neurological disorder that affects the 6th and 7 th cranial nerves. 1 in 500,000 children can be born with this condition and at the moment there is no reason as to why.
    For Charlee the simply things we take for granted she finds difficult to do. She is unable to smile, eat orally and swallow. She also has hypotonia (floppy muscles) which affect her movement and motor skills, a clef pallet and one kidney.
    She is currently is fed via gastric port into her lower bowel. As she gets older and with therapy we hope that she will begin to eat orally.
    The reason for our page is that we hope to fund raise enough money to take Charlee to a clinic in America that we have been working with via Skype that have worked with children like her and got exceptional results. The cost of the trip is going to cost us between 20K & 25K so any donations will help tremendously. We are hoping to smash our 10K target. Whilst the NHS have been great in treating Charlees medical needs there is no one in the U.K that have the expertise therapy she now requires. The clinic offer innovative therapy to children using the latest state of the art treatments, techniques and therapies. Charlee will have access to therapists that are trained in child development, neurodevelopment, sensory integration and sensory motor development, as well as speech and language pathologists, Occupational and Physical therapists all under one roof.
    Both Steve and I both made a promise that we would do what ever it takes to give her the best life possible and that she deserves. Over the rest of the year family and friends will be raising money doing various things so we can finally take her to America in 2018 when she is strong enough to cope with the flight.
    To kick start the fund raising Steve and his friend Lee will be doing a skydive.Date and time to be confirmed.

    www.it4k.com

    Updates

    1

    • Natalie Muller1 year ago
      Natalie Muller

      Natalie Muller

      1 year ago

      So Steve and Lees skydive is booked for the 25 th June. Today we did a carboot sale Which raised £265. Lots more planned so keep watching

      Share this update to help us raise more

    1 year ago

    Natalie Muller started crowdfunding

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    Page last updated on: 12/4/2017 4:43 PM

    Supporters

    389

    • Uxbridge College Staff

      Uxbridge College Staff

      Dec 4, 2017

      Dear Natalie wishing Charlee the very best for the future from all your friends at Uxbridge College

      £261.00

    • Justin Foster

      Justin Foster

      Nov 6, 2017

      X

      £250.00

    • Marion and Frank

      Marion and Frank

      Oct 21, 2017

      Hi Natalie and Steve, we are donating to your Crowdfunding Account directly as your Dad's Account has been closed down so we were unable to support his walk. We wish Charlee all the very best.

      £100.00

    • Allen Coldrake

      Allen Coldrake

      Oct 8, 2017

      For Allen's run - Richard Halliday

      £10.00

    • James Turner

      James Turner

      Oct 5, 2017

    • Kathy  Turner

      Kathy Turner

      Oct 3, 2017

    • Jonny and Emma  Bugg

      Jonny and Emma Bugg

      Oct 3, 2017

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    About Crowdfunding
    About the fundraiser
    Natalie Muller

    Natalie Muller

    Mum of 2 gorgeous girls and partner to Steve, help me raise money for my little girl who has mobieus syndrome and the chance of therapy in America

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